Involving people affected by a rare condition in shaping future genomic research
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DOI: 10.1186/s40900-021-00256-3
Abstract: Background There is evidence that involving potential participants and the public in co-designing research can improve the quality of the study design, recruitment and acceptability of the research, but appropriate methodologies for doing this are… read more here.
Keywords: research; genomic research; study; involving people ... See more keywords