A Global Approach to Rare Diseases Research and Orphan Products Development: The International Rare Diseases Research Consortium (IRDiRC).
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DOI: 10.1007/978-3-319-67144-4_20
Abstract: Rare diseases present unique challenges to researchers due to the global distribution of patients, complexity and low prevalence of each disease, and limited availability of data. They are also overwhelming and costly for patients, their… read more here.
Keywords: rare diseases; diseases research; research consortium; irdirc ... See more keywords