Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders
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DOI: 10.1038/s41431-019-0513-3
Abstract: Recent interest in personalized medicine has highlighted the importance of research in ethical, legal, and social issues (ELSI). Issues in ELSI research may be magnified in the rare diseases population (i.e., small numbers of affected… read more here.
Keywords: research; social issues; rare diseases; issues elsi ... See more keywords