“This pregnancy makes sense”: Experiences of women who have decided to continue pregnancy after lethal fetal diagnosis
Sign Up to like & getrecommendations! Published in 2022 at "Death Studies"
DOI: 10.1080/07481187.2022.2038310
Abstract: Abstract Lethal fetal diagnosis defines severe developmental disorders that lead to the death of a fetus or newborn. Using semi-structured interviews, we explored the experiences of women in Poland who actively decided to continue with… read more here.
Keywords: lethal fetal; decided continue; diagnosis; fetal diagnosis ... See more keywords
Null variants in AGRN cause lethal fetal akinesia deformation sequence
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DOI: 10.1111/cge.13677
Abstract: We present a case of lethal fetal akinesia deformation sequence (FADS) caused by a frameshift variant in trans with a 148 kbp deletion encompassing 3‐36 exons of AGRN. Pathogenic variants in AGRN have been described… read more here.
Keywords: fetal akinesia; lethal fetal; variants agrn; akinesia deformation ... See more keywords
Perinatal grief following neonatal comfort care for lethal fetal condition.
Sign Up to like & getrecommendations! Published in 2019 at "Journal of neonatal-perinatal medicine"
DOI: 10.3233/npm-180180
Abstract: BACKGROUND The objective of the study was to assess perinatal grief experienced after continuing pregnancy and comfort care in women diagnosed with lethal fetal condition compared with termination of pregnancy for fetal anomaly (TOPFA). METHODS… read more here.
Keywords: grief; perinatal grief; comfort care; lethal fetal ... See more keywords