A Metasynthesis: Uncovering What Is Known About the Experiences of Families With Children Who Have Life‐limiting and Life‐threatening Illnesses☆
Sign Up to like & getrecommendations! Published in 2018 at "Journal of Pediatric Nursing"
DOI: 10.1016/j.pedn.2017.11.004
Abstract: Purpose: To conduct a metasynthesis of qualitative research exploring parents' psychosocial experiences during complex and traumatic life transitions related to caring for a child with a life‐limiting (LLI) or life‐threatening illness (LTI). Background: Parents' experiences… read more here.
Keywords: nursing; life threatening; life limiting; metasynthesis ... See more keywords
Training surgeons to optimize communication and symptom management in patients with life-limiting conditions: systematic review
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DOI: 10.1093/bjsopen/zrad015
Abstract: Abstract Background Surgeons routinely care for patients with life-limiting illness, requiring communication and symptom management skills supported by appropriate training. The objective of this study was to appraise and synthesize studies that assessed surgeon-directed training… read more here.
Keywords: communication; communication symptom; training; life limiting ... See more keywords
Mutation of daf‐2 extends lifespan via tissue‐specific effectors that suppress distinct life‐limiting pathologies
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DOI: 10.1111/acel.13324
Abstract: In aging Caenorhabditis elegans, as in higher organisms, there is more than one cause of death. C. elegans exhibit early death with a swollen, infected pharynx (P death), and later death with pharyngeal atrophy (p… read more here.
Keywords: limiting pathologies; death; daf; insulin igf ... See more keywords
Outcomes of deprescribing interventions in older patients with life‐limiting illness and limited life expectancy: A systematic review
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DOI: 10.1111/bcp.14113
Abstract: Older patients with life‐limiting illness (LLI) and limited life expectancy (LLE) continue to receive potentially inappropriate medicines, consequently deprescribing is often necessary. However, deprescribing in this population can be complex and challenging. Therefore, we aimed… read more here.
Keywords: limited life; patients life; life; life limiting ... See more keywords
Decision-making and future planning for children with life-limiting conditions: a qualitative systematic review and thematic synthesis.
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DOI: 10.1111/cch.12461
Abstract: BACKGROUND In the last decade, the number of children with life-limiting and life-threatening conditions in England has almost doubled, and it is estimated that worldwide, there are 1.2 million children with palliative care needs. Families… read more here.
Keywords: decision; limiting conditions; children life; life limiting ... See more keywords
Conflicting realities experienced by children with life‐limiting and life‐threatening conditions when transitioning to adult health services AS PER PDF/TI>
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DOI: 10.1111/jan.13811
Abstract: AIMS The aim of this study was to report a secondary qualitative analysis exploring the cultural and practical differences that young people and parents experience when transitioning from children's to adult services. BACKGROUND Despite two… read more here.
Keywords: adult; adult services; life limiting; limiting life ... See more keywords
Experiences of food and mealtime from the perspective of patients with chronic life-limiting disease: A mixed-method systematic review.
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DOI: 10.1111/jan.14927
Abstract: AIM To describe and synthesise experiences of food and mealtimes from the perspective of patients with chronic life-limiting disease. DESIGN A mixed-method systematic review. DATA SOURCES The databases Academic Search Complete, CINAHL, Nursing and Allied… read more here.
Keywords: limiting disease; chronic life; life limiting; patients chronic ... See more keywords
‘I have to live with the decisions I make’: laying a foundation for decision making for children with life-limiting conditions and life-threatening illnesses
Sign Up to like & getrecommendations! Published in 2017 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2015-310345
Abstract: The relationship between parents and clinician is critical to the care and treatment of children with life-limiting conditions (LLCs) and life-threatening illnesses (LTIs). This relationship is built and maintained largely in consultations. In this article… read more here.
Keywords: children life; life threatening; life limiting; limiting conditions ... See more keywords
Intensive care: because we can or because we should?
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DOI: 10.1136/archdischild-2017-314731
Abstract: The case mix of our paediatric intensive care units (PICU) is changing and not by design or commissioned intention. The results are presented of a data linkage between the Paediatric Intensive Care Audit Network (PICANET), Hospital Episode… read more here.
Keywords: care; case mix; intensive care; life limiting ... See more keywords
Place of death of children and young adults with a life-limiting condition in England: a retrospective cohort study
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DOI: 10.1136/archdischild-2020-319700
Abstract: Objective To assess trends in place of death for children with a life-limiting condition and the factors associated with death at home or hospice rather than hospital. Design Observational cohort study using linked routinely collected… read more here.
Keywords: death; hospice; life limiting; limiting condition ... See more keywords
Navigating two ‘truths’: a qualitative study of physician-led end-of-life decision-making for children with life-limiting conditions
Sign Up to like & getrecommendations! Published in 2023 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2022-324963
Abstract: Objective To describe how paediatricians undertake the process of end-of-life decision-making for a child with a life-limiting condition who is unable to participate in decision-making for themselves. Design A qualitative phenomenological study using semistructured interviews… read more here.
Keywords: end life; life limiting; life; decision making ... See more keywords