Lived Experience-Led Research Agenda to Address Early Death in People With a Diagnosis of a Serious Mental Illness: A Consensus Statement.
Sign Up to like & getrecommendations! Published in 2023 at "JAMA network open"
DOI: 10.1001/jamanetworkopen.2023.15479
Abstract: Importance People with serious mental illness (SMI), defined as a diagnosis of schizophrenia spectrum disorder, bipolar disorder, or disabling major depressive disorder) die approximately 10 to 25 years earlier than the general population. Objective To… read more here.
Keywords: experience led; led research; lived experience; early mortality ... See more keywords
The importance of the person/patient/survivor's lived experience across the cancer control continuum
Sign Up to like & getrecommendations! Published in 2021 at "Cancer"
DOI: 10.1002/cncr.33878
Abstract: The focus of the vast majority of the original research articles in oncology is the tumor itself: its molecular beginnings, its development and progression in a microenvironment, its growth and clinical detection, and its treatment… read more here.
Keywords: cancer; lived experience; patient survivor; person patient ... See more keywords
'Nobody taught her how to be a mother': The lived experience of mothering without a mother.
Sign Up to like & getrecommendations! Published in 2023 at "Infant mental health journal"
DOI: 10.1002/imhj.22059
Abstract: Maternal grandmothers play a vital role in the transition to motherhood for their own daughters. The current study adds to this literature by investigating the lived experience of motherhood for women who lacked a meaningful… read more here.
Keywords: mother; nobody taught; lived experience; taught mother ... See more keywords
An Evaluation of co‐Delivered Foundational BPD Training With Health Service Staff
Sign Up to like & getrecommendations! Published in 2025 at "Personality and Mental Health"
DOI: 10.1002/pmh.70016
Abstract: ABSTRACT Individuals with Borderline Personality Disorder (BPD) are frequent users of mental health services and may be perceived negatively by mental health professionals. Educational training has been associated with improved attitudes towards individuals with this… read more here.
Keywords: training; staff; lived experience; bpd ... See more keywords
The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics
Sign Up to like & getrecommendations! Published in 2022 at "World Psychiatry"
DOI: 10.1002/wps.20959
Abstract: Psychosis is the most ineffable experience of mental disorder. We provide here the first co‐written bottom‐up review of the lived experience of psychosis, whereby experts by experience primarily selected the subjective themes, that were subsequently… read more here.
Keywords: experience; lived experience; experts experience; experience psychosis ... See more keywords
Recovery at 30: Integrating Lived Experience Expertise into Mental Health Research in Israel
Sign Up to like & getrecommendations! Published in 2025 at "Community Mental Health Journal"
DOI: 10.1007/s10597-024-01369-1
Abstract: A major component of recovery is the inclusion of lived experience to transform the culture of Mental Health (MH) services. In Israel lived experience has been increasingly integrated into services through peer roles. However, lived… read more here.
Keywords: mental health; culture; research; lived experience ... See more keywords
A Chance to have a Voice: The Motivations and Experiences of Female Victim-Survivors of Domestic, Family and Sexual Violence who Joined a Lived Experience Research Group
Sign Up to like & getrecommendations! Published in 2024 at "Journal of Family Violence"
DOI: 10.1007/s10896-024-00724-w
Abstract: Having individuals with lived experience as co-researchers collaborate in research has increasingly become recognized as empowering for those involved and necessary for translational research. However, there has been limited exploration of how lived experience involvement… read more here.
Keywords: victim survivors; group; research; lived experience ... See more keywords
The Lived Experience of Myasthenia Gravis: A Patient-Led Analysis
Sign Up to like & getrecommendations! Published in 2021 at "Neurology and Therapy"
DOI: 10.1007/s40120-021-00285-w
Abstract: A greater understanding of the reality of living with myasthenia gravis (MG) may improve management and outcomes for patients. However, there is little published data on the patient perspective of how MG impacts life. Our… read more here.
Keywords: analysis; lived experience; myasthenia gravis; patient council ... See more keywords
The lived experience of disadvantaged communities affected by the 2015 South Indian floods: Implications for disaster risk reduction dialogue
Sign Up to like & getrecommendations! Published in 2021 at "International journal of disaster risk reduction"
DOI: 10.1016/j.ijdrr.2021.102046
Abstract: Abstract Poverty and discrimination compound vulnerability to disasters. Yet, people who experience these are some of the least involved groups in Disaster Risk Reduction (DRR) dialogue and research. This study aims to fill that gap… read more here.
Keywords: risk reduction; lived experience; disaster; disaster risk ... See more keywords
The lived experience of a NICU father: A descriptive phenomenological study
Sign Up to like & getrecommendations! Published in 2020 at "Journal of Neonatal Nursing"
DOI: 10.1016/j.jnn.2020.09.003
Abstract: Abstract The birth of an infant requiring admittance to the Neonatal Intensive Care Unit may produce heightened stress for parents. Despite a plethora of research examining the mothers' experiences during this time, limited research is… read more here.
Keywords: care; intensive care; study; lived experience ... See more keywords
Lived experience as a unit of analysis for the study of learning
Sign Up to like & getrecommendations! Published in 2019 at "Learning, Culture and Social Interaction"
DOI: 10.1016/j.lcsi.2019.100345
Abstract: Abstract To study individual features of a learning activity entangled in a material and social environment, we adopt lived experience as a fundamental unit of analysis. Defined as an ongoing process which is known “from… read more here.
Keywords: study; unit analysis; experience; lived experience ... See more keywords