Conceptualization of Surrogate Decision-making Among Spokespersons for Chronically Ill Patients
Sign Up to like & getrecommendations! Published in 2022 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2022.45608
Abstract: Key Points Question How do patient spokespersons distinguish surrogate medical decision-making from patient advocacy? Findings This qualitative study of a subset of 36 participants in a randomized clinical trial found substantial variability in how spokespersons… read more here.
Keywords: conceptualization surrogate; decision making; decision; making among ... See more keywords
iBDecide: A web-based tool to promote engagement in shared decision-making among adolescents with ulcerative colitis.
Sign Up to like & getrecommendations! Published in 2021 at "Patient education and counseling"
DOI: 10.1016/j.pec.2021.10.023
Abstract: BACKGROUND Adolescents and young adults (AYAs) seek increased autonomy and self-efficacy. AYAs must learn to manage their medical care in preparation for transition to adult healthcare. Our team's research found that AYAs need more information… read more here.
Keywords: decision; making among; shared decision; engagement shared ... See more keywords
Cancer-Related Decision-Making Among Adolescents, Young Adults, Caregivers, and Oncology Providers.
Sign Up to like & getrecommendations! Published in 2021 at "Qualitative health research"
DOI: 10.1177/10497323211037654
Abstract: Decision-making among adolescents and young adults with cancer (AYA) is often complex, ongoing, and multifaceted, involving caregiver and oncology provider perspectives. Engagement in decision-making against the backdrop of normative developmental processes of acquiring autonomy and… read more here.
Keywords: decision making; making among; oncology; oncology providers ... See more keywords
[Decision making among older adults in hemodialysis. A qualitative assessment].
Sign Up to like & getrecommendations! Published in 2020 at "Revista medica de Chile"
DOI: 10.4067/s0034-98872020000300281
Abstract: BACKGROUND In Chile there are 22,310 people in Chronic Hemodialysis (CHD), 53% of them older adults (OA). Shared decision-making and advance directives (AD) are especially important in OA with end-stage chronic renal failure, since they… read more here.
Keywords: among older; older adults; making among; decision making ... See more keywords