Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members.
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DOI: 10.1089/bio.2022.0205
Abstract: Data access committees (DACs) are critical players in the data sharing ecosystem. DACs review requests for access to data held in one or more repositories and where specific constraints determine how the data may be… read more here.
Keywords: parity managing; achieving procedural; data access; managing access ... See more keywords
Managing access to advanced therapy medicinal products: Challenges for NHS Wales
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DOI: 10.1111/bcp.14286
Abstract: Advanced Therapy Medicinal Products (ATMPs), which include gene, somatic cell therapies and tissueâengineered medicines, have the potential to transform current care pathways by offering durable and potentially curative outcomes. However, they are exceptionally expensive, with… read more here.
Keywords: therapy medicinal; access advanced; medicinal products; advanced therapy ... See more keywords