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Published in 2019 at "European Journal of Human Genetics"
DOI: 10.1038/s41431-019-0503-5
Abstract: The majority of biobank policies and consent forms do not address post-mortem use of data for medical research, thus causing uncertainty after research participants’ death. This systematic review identifies studies examining stakeholders’ perspectives on this…
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Keywords:
research;
research participants;
mortem use;
post mortem ... See more keywords