An unusual cause of ventilatory failure in motor neurone disease
Sign Up to like & getrecommendations! Published in 2017 at "Respiratory Medicine Case Reports"
DOI: 10.1016/j.rmcr.2017.03.013
Abstract: A patient previously diagnosed with motor neurone disease (MND) and gastrostomy-fed was under surveillance for ventilatory decline via our respiratory centre. At a planned review she was found to be hypercapnic, which would usually prompt… read more here.
Keywords: neurone disease; ventilatory failure; motor neurone;
How do people with Motor Neurone Disease experience dysphagia? A qualitative investigation of personal experiences
Sign Up to like & getrecommendations! Published in 2019 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2019.1630487
Abstract: Abstract Introduction Motor Neurone Disease is a rapidly progressing, fatal and relatively rare neurodegenerative disease of unknown etiology. People diagnosed with Motor Neurone Disease develop a range of symptoms including dysphagia (swallowing impairments). Although generally… read more here.
Keywords: disease; dysphagia; people motor; neurone disease ... See more keywords
Grief, depression, and anxiety in bereaved caregivers of people with motor neurone disease: a population-based national study
Sign Up to like & getrecommendations! Published in 2020 at "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration"
DOI: 10.1080/21678421.2020.1790610
Abstract: Abstract Background Despite the traumatic and fatal nature of motor neurone disease (MND) and the caring experiences being described as unrelenting, little is known about risk of psychiatric morbidity and Prolonged Grief Disorder (PGD) for… read more here.
Keywords: depression; anxiety; family; disease ... See more keywords
Man with motor neurone disease challenges ban on assisted suicide
Sign Up to like & getrecommendations! Published in 2017 at "British Medical Journal"
DOI: 10.1136/bmj.j139
Abstract: A man with motor neurone disease is mounting a legal challenge to the ban on assisted suicide in England and Wales, in a move that could lead to a change in the law. Noel Conway,… read more here.
Keywords: man motor; ban assisted; neurone disease; motor neurone ... See more keywords
Genetic testing in motor neurone disease
Sign Up to like & getrecommendations! Published in 2022 at "Practical Neurology"
DOI: 10.1136/practneurol-2021-002989
Abstract: A minority (10%–15%) of cases of amyotrophic lateral sclerosis (ALS), the most common form of motor neurone disease (MND), are currently attributable to pathological variants in a single identifiable gene. With the emergence of new… read more here.
Keywords: testing motor; neurone disease; genetic testing; motor neurone ... See more keywords
S124 Symptoms and daytime pulse oximetry: an unreliable screen for ventilatory failure in motor neurone disease
Sign Up to like & getrecommendations! Published in 2018 at "Thorax"
DOI: 10.1136/thorax-2018-212555.130
Abstract: Introduction Most people with motor neurone disease (MND) die from ventilatory failure due to respiratory muscle weakness. Once PaCO2 is greater than 6 kPa, survival is measured in weeks but repeated blood gas estimates (ABG’s) can… read more here.
Keywords: ventilatory failure; relevant symptoms; neurone disease; motor neurone ... See more keywords
The use of digital legacies with people affected by motor neurone disease for continuing bonds: An interpretative phenomenological analysis study
Sign Up to like & getrecommendations! Published in 2019 at "Palliative Medicine"
DOI: 10.1177/0269216319845805
Abstract: Background: Motor neurone disease is a progressive neurodegenerative disease without cure. Little is known about how young people are affected when a family member has the illness and subsequently dies, resulting in a gap in… read more here.
Keywords: digital legacies; disease; neurone disease; motor neurone ... See more keywords
The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review
Sign Up to like & getrecommendations! Published in 2020 at "Palliative Medicine"
DOI: 10.1177/0269216320908775
Abstract: Background: Despite being a terminal neurodegenerative disease, the role of palliative care is less recognised for motor neurone disease than for other life-limiting conditions. Understanding the experiences of, and need for, palliative care for patients… read more here.
Keywords: disease; palliative care; people motor; neurone disease ... See more keywords
Providing life-sustaining treatments at home for those with Motor Neurone Disease: A qualitative study of bereaved family members’ experiences of responsibility
Sign Up to like & getrecommendations! Published in 2025 at "Palliative Medicine"
DOI: 10.1177/02692163251327866
Abstract: Background: Motor neurone disease is an incurable neurodegenerative condition that progressively impairs motor function. It affects mobility, speech, swallowing and breathing, leading to significant dependence on others. Home mechanical ventilation can alleviate respiratory symptoms and… read more here.
Keywords: family; neurone disease; family members; bereaved family ... See more keywords
Non-invasive ventilation for motor neurone disease patients in the West of Scotland Long-Term Ventilation Unit (WoSLTVU)
Sign Up to like & getrecommendations! Published in 2018 at "European Respiratory Journal"
DOI: 10.1183/13993003.congress-2018.pa2384
Abstract: Introduction : Motor Neurone Disease (MND) results in respiratory muscle weakness and respiratory failure (RF) with major consequences on quality of life and survival, both of which can be improved with Non-invasive Ventilation (NIV)[1,2]. Aim:… read more here.
Keywords: ventilation; invasive ventilation; non invasive; neurone disease ... See more keywords
‘A lightbulb moment’: carers’ experiences of behavioural symptoms in motor neurone disease before and after MiNDToolkit
Sign Up to like & getrecommendations! Published in 2024 at "BMC Neurology"
DOI: 10.1186/s12883-024-03746-5
Abstract: To explore carers’ experiences of behavioural symptoms in Motor Neurone Disease (MND), before and after using the MiNDToolkit, a novel internet-based psychoeducational intervention to support management of behavioural symptoms (BehSymp) in MND. The study also… read more here.
Keywords: carers experiences; experiences behavioural; mindtoolkit; symptoms motor ... See more keywords