The Muscular Dystrophy Association’s neuroMuscular ObserVational Research Data Hub (MOVR): Design, Methods, and Initial Observations
Sign Up to like & getrecommendations! Published in 2023 at "Journal of Neuromuscular Diseases"
DOI: 10.3233/jnd-221551
Abstract: Background: Neuromuscular disease (NMD) research is experiencing tremendous growth as a result of progress in diagnostics and therapeutics yet there continues to be a significant clinical data shortage for these rare diseases. To maximize the… read more here.
Keywords: data hub; observational research; movr; muscular dystrophy ... See more keywords