Evaluating Comorbidities, Natural History, and Predictors of Early Resolution in a Cohort of Children With Chronic Urticaria
Sign Up to like & getrecommendations! Published in 2017 at "JAMA Dermatology"
DOI: 10.1001/jamadermatol.2017.3182
Abstract: Importance Chronic urticaria (CU) affects 0.1% to 0.3% of children. Most cases have no identifiable trigger and are classified as chronic spontaneous urticaria (CSU). At least half of patients with CSU may have an autoimmune… read more here.
Keywords: resolution; bat; natural history; history predictors ... See more keywords
Incidence and Natural History of Pediatric Large Vessel Occlusion Stroke: A Population Study.
Sign Up to like & getrecommendations! Published in 2022 at "JAMA neurology"
DOI: 10.1001/jamaneurol.2022.0323
Abstract: Importance The incidence and natural history of large vessel occlusion (LVO) stroke in children is largely unknown. These knowledge gaps limit the uptake of reperfusion therapies and reduce the efficiency of pediatric acute stroke pathways.… read more here.
Keywords: natural history; patients lvo; history pediatric; incidence natural ... See more keywords
Natural history and survival rate of familial amyloidosis with polyneuropathy: A nationwide databank
Sign Up to like & getrecommendations! Published in 2023 at "Annals of Clinical and Translational Neurology"
DOI: 10.1002/acn3.51765
Abstract: Hereditary amyloid transthyretin (ATTRv) amyloidosis with polyneuropathy, a rare autosomal‐dominant disease, has gained attention in recent years owing to treatment improvements. However, epidemiological real‐world mega database of nationwide natural history and survival rates, especially with… read more here.
Keywords: natural history; amyloidosis polyneuropathy; history survival;
Comparing Natural History of Early and Late Onset Pediatric Multiple Sclerosis
Sign Up to like & getrecommendations! Published in 2022 at "Annals of Neurology"
DOI: 10.1002/ana.26322
Abstract: This study was undertaken to describe and compare disease course and prognosis of early (ie, disease onset before age 11 years) and late (ie, disease onset after age 11 years) onset pediatric multiple sclerosis. read more here.
Keywords: natural history; onset pediatric; pediatric multiple; multiple sclerosis ... See more keywords
Responsiveness of the SARA and natural history in 884 recessive and early onset ataxia patients.
Sign Up to like & getrecommendations! Published in 2023 at "Annals of neurology"
DOI: 10.1002/ana.26712
Abstract: OBJECTIVE The Scale for the Assessment and Rating of Ataxia (SARA) is the most widely applied clinical outcome assessment (COA) for genetic ataxias, but presents metrological and regulatory challenges. To facilitate trial planning, we characterize… read more here.
Keywords: natural history; sara; early onset; recessive early ... See more keywords
A five arm natural history study of nasal vestibulitis
Sign Up to like & getrecommendations! Published in 2023 at "Cancer Medicine"
DOI: 10.1002/cam4.5887
Abstract: Nasal symptoms are frequently reported by patients undergoing chemotherapy. read more here.
Keywords: natural history; five arm; history study; arm natural ... See more keywords
Identity of the holotype and type locality of Rhabdophis leonardi (Wall, 1923) (Colubridae: Natricinae), with notes on the morphology and natural history of the species in southwestern China
Sign Up to like & getrecommendations! Published in 2023 at "Ecology and Evolution"
DOI: 10.1002/ece3.10032
Abstract: Abstract The original description of Natrix leonardi (currently Rhabdophis leonardi) by Frank Wall in 1923, based on a specimen from the “Upper Burma Hills,” lacked important morphological details that have complicated the assignment of recently… read more here.
Keywords: natural history; rhabdophis leonardi; leonardi; wall 1923 ... See more keywords
A regionally coherent ecological fingerprint of climate change, evidenced from natural history collections
Sign Up to like & getrecommendations! Published in 2022 at "Ecology and Evolution"
DOI: 10.1002/ece3.9471
Abstract: Abstract Climate change has dramatic impacts on ecological systems, affecting a range of ecological factors including phenology, species abundance, diversity, and distribution. The breadth of climate change impacts on ecological systems leads to the occurrence… read more here.
Keywords: natural history; climate change; change; phenology ... See more keywords
Trajectories of health‐related quality of life during the natural history of dementia: a six‐wave longitudinal study
Sign Up to like & getrecommendations! Published in 2017 at "International Journal of Geriatric Psychiatry"
DOI: 10.1002/gps.4551
Abstract: The objective of this study was to explore profiles of quality of life (QoL) trajectories during the natural history of dementia and individual variations contributing to QoL trajectories. read more here.
Keywords: natural history; quality life; study; history dementia ... See more keywords
Observations on the Natural History of Camurati‐Engelmann Disease
Sign Up to like & getrecommendations! Published in 2019 at "Journal of Bone and Mineral Research"
DOI: 10.1002/jbmr.3670
Abstract: Camurati‐Engelmann disease (OMIM 31300) is a rare cranio‐tubular bone dysplasia characterized by osteosclerosis of the long bones and skull caused by dominantly‐inherited mutations in the transforming growth factor beta 1 (TGFB1) gene. A wide variation… read more here.
Keywords: engelmann disease; natural history; camurati engelmann; disease ... See more keywords
Natural History and Real‐World Data in Rare Diseases: Applications, Limitations, and Future Perspectives
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Clinical Pharmacology"
DOI: 10.1002/jcph.2134
Abstract: Rare diseases represent a highly heterogeneous group of disorders with high phenotypic and genotypic diversity within individual conditions. Due to the small numbers of people affected, there are unique challenges in understanding rare diseases and… read more here.
Keywords: natural history; world data; rare diseases; real world ... See more keywords