Assessing the Unmet Social Needs and Financial Hardship of Cancer Caregivers: A Scoping Review.
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DOI: 10.1007/s11912-025-01726-7
Abstract: The objective of this scoping review was to characterize published literature on unmet social needs and financial hardship among cancer caregivers. We sought to describe study attributes; assess the associations of needs with physical and… read more here.
Keywords: cancer caregivers; needs financial; financial hardship; social needs ... See more keywords
Understanding the Needs and Financial Challenges of Patients With Epidermolysis Bullosa: Insights From Donation Requests.
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DOI: 10.1111/pde.70047
Abstract: Epidermolysis bullosa (EB) is a rare genetic disorder requiring intensive and costly care, often diagnosed in infancy when families are unprepared for the financial burden. We analyzed 160 U.S.-based crowdfunding campaigns for living EB patients, extracting… read more here.
Keywords: epidermolysis bullosa; patients requested; understanding needs; financial challenges ... See more keywords