Eye‐tracking–based assessment suggests preserved well‐being in locked‐in patients
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DOI: 10.1002/ana.24871
Abstract: We assessed quality of life (QoL) and psychological well‐being in patients with amyotrophic lateral sclerosis–induced locked‐in state and their next of kin in a fully unbiased manner using eye‐tracking computer systems. Eleven of 30 screened… read more here.
Keywords: assessment suggests; tracking based; based assessment; eye tracking ... See more keywords
Experiences of next of kin to patients with amyotrophic lateral sclerosis using invasive ventilation via tracheostomy
Sign Up to like & getrecommendations! Published in 2019 at "Disability and Rehabilitation"
DOI: 10.1080/09638288.2019.1700561
Abstract: Abstract Objective To investigate the experience of being the next of kin to patients with amyotrophic lateral sclerosis who use invasive ventilation via tracheostomy. Methods Semi-structured interviews with eight next of kin were conducted and… read more here.
Keywords: via tracheostomy; kin patients; ventilation via; invasive ventilation ... See more keywords
Dying from ALS in Sweden: clinical status, setting, and symptoms
Sign Up to like & getrecommendations! Published in 2022 at "Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration"
DOI: 10.1080/21678421.2022.2096411
Abstract: Abstract Objectives This retrospective cohort study aims to provide a comprehensive account of death in Swedish patients with ALS, including clinical status preceding death, the death setting, as well as symptoms. Methods The study presents… read more here.
Keywords: dying als; next kin; death; cohort ... See more keywords
Next of Kin Involvement in Regulatory Investigations of Adverse Events That Caused Patient Death: A Process Evaluation (Part I – The Next of Kin’s Perspective)
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DOI: 10.1097/pts.0000000000000630
Abstract: Objective The aim of the study was to explore experiences from the next of kin’s perspective of a new involvement method in the regulatory investigation process of adverse events causing patient death. Methods The study… read more here.
Keywords: kin perspective; process; adverse events; kin ... See more keywords
Developing Methods to Support Collaborative Learning and Co-creation of Resilient Healthcare—Tips for Success and Lessons Learned From a Norwegian Hospital Cancer Care Study
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DOI: 10.1097/pts.0000000000000958
Abstract: Background There is a growing attention on the role of patients and stakeholders in resilience, but there is lack of knowledge and methods on how to support collaborative learning between stakeholders and co-creation of resilient… read more here.
Keywords: collaborative learning; next kin; resilient healthcare; creation ... See more keywords
The significance of hope as experienced by the next of kin to critically ill patients in the intensive care unit.
Sign Up to like & getrecommendations! Published in 2020 at "Scandinavian journal of caring sciences"
DOI: 10.1111/scs.12864
Abstract: AIM To examine and increase understanding of diverse aspects of hope as experienced by the next of kin when someone close to them is critically ill in intensive care unit (ICU). DESIGN A qualitative study… read more here.
Keywords: intensive care; kin; critically ill; next kin ... See more keywords
For the sake of multifacetedness. Why artificial intelligence patient preference prediction systems shouldn’t be for next of kin
Sign Up to like & getrecommendations! Published in 2023 at "Journal of Medical Ethics"
DOI: 10.1136/jme-2022-108775
Abstract: INTRODUCTION In their contribution ‘Ethics of the algorithmic prediction of goal of care preferences’ Ferrario et al elaborate a from theory to practice contribution concerning the realisation of artificial intelligence (AI)based patient preference prediction (PPP)… read more here.
Keywords: patient preference; next kin; artificial intelligence; prediction ... See more keywords
Who Counts as Family? How Standards Stratify Lives
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DOI: 10.1177/00031224221092303
Abstract: Building on Max Weber’s observation that the state’s reliance on formal tools leads to governance for some and dehumanization for others, we investigate administrative standards as a social mechanism of stratification that sorts people into… read more here.
Keywords: stratify lives; family; counts family; next kin ... See more keywords
'Without Them, There Would Be Almost Nothing' - Experiences of Interacting With Volunteers in Everyday Life in Nursing Homes - Perspectives of Residents and Next of Kin.
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DOI: 10.1177/00302228221110329
Abstract: The study's aim is to explore the experiences of nursing home residents and their next of kin related to interacting with volunteers in daily life and when the resident's death is imminent. Qualitative data consisted… read more here.
Keywords: residents next; interacting volunteers; nursing homes; next kin ... See more keywords
Between the patient and the next of kin in end-of-life care: A critical study based on feminist theory
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DOI: 10.1177/0969733016688939
Abstract: Background: For the experience of end-of-life care to be ‘good’ many ethical challenges in various relationships have to be resolved. In this article, we focus on challenges in the nurse–next of kin relationship. Little is… read more here.
Keywords: end life; next kin; life care;
In the Shadows of Patients with Upper Gastrointestinal Cancer: An Interview Study with Next of Kin about Their Experiences Participating in Surgical Cancer Care
Sign Up to like & getrecommendations! Published in 2020 at "Clinical Nursing Research"
DOI: 10.1177/1054773820940873
Abstract: The study aimed to explore the experiences of participation among the next of kin of patients who had surgery for upper abdominal tumours. This study had a qualitative research design and data were analysed by… read more here.
Keywords: kin; cancer; care; patients upper ... See more keywords