Choosing not to know: accounts of non-engagement with pre-symptomatic testing for Machado-Joseph disease
Sign Up to like & getrecommendations! Published in 2018 at "European Journal of Human Genetics"
DOI: 10.1038/s41431-018-0308-y
Abstract: This paper reports accounts from people at-risk for, or affected by, Machado-Joseph disease, and their family members, about their decisions not to seek pre-symptomatic testing, therefore remaining (for the time) uninformed about their genetic status.… read more here.
Keywords: machado joseph; pre symptomatic; non engagement; family ... See more keywords
Strategic non-engagement: New Russian political migrants and the effects of extraterritorial spillover of authoritarianism
Sign Up to like & getrecommendations! Published in 2025 at "Social Forces"
DOI: 10.1093/sf/soaf076
Abstract: Abstract:This research investigates the ways in which authoritarianism constrains the transnational political engagement of recent Russian emigrants, a group known as relokanti. The study centers on three interconnected social roles of relokanti: as citizens of… read more here.
Keywords: non engagement; extraterritorial spillover; spillover authoritarianism; authoritarianism ... See more keywords