Mapping cancer patient online support groups: enhancing patient care in a low-middle income healthcare system
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DOI: 10.1007/s00520-025-09535-1
Abstract: Cancer’s impact extends beyond the physical domain, affecting patients’ psychological, social, and financial well-being. Consequently, cancer support groups have a crucial role in guiding patients through their cancer journey and improving their quality of life.… read more here.
Keywords: support groups; cancer; patient online; enhancing patient ... See more keywords
Interactions and perceptions of patients with rheumatoid arthritis participating in an online support group
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DOI: 10.1007/s10067-020-04967-y
Abstract: Objective Peer support is important for psychosocial well-being in patients with rheumatoid arthritis (RA). Our objective was to assess the interactions, engagement, and perceptions of participants in an online support group for patients with RA.… read more here.
Keywords: group; support group; rheumatoid arthritis; online support ... See more keywords
Grieving in the digital era: Mapping online support for grief and bereavement.
Sign Up to like & getrecommendations! Published in 2020 at "Patient education and counseling"
DOI: 10.1016/j.pec.2020.06.013
Abstract: OBJECTIVE To describe the landscape of digital resources available for grief and bereavement, and to explore cultural variations through the analysis of patterns in three languages with a multinational repartition (English, French and Spanish). METHODS… read more here.
Keywords: mapping online; support grief; grief bereavement; online support ... See more keywords
Actual Solidarity through Virtual Support: A Pilot Descriptive Study of an Online Support Group for Bereaved Parents.
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DOI: 10.1089/jpm.2020.0617
Abstract: Background: Hospital-based support for bereaved parents is regarded as best practice. Little is known about parental perceptions or programmatic potential of online grief support. Objectives: To learn from bereaved parent participants' experiences with an online… read more here.
Keywords: group; bereaved parents; descriptive study; support group ... See more keywords
Willingness of Joining Online Support Groups Among Men Who Have Sex With Men Living With HIV in Shandong Province of China: A Mixed Methods Study
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DOI: 10.1097/olq.0000000000002067
Abstract: A mixed methods study conducted in Shandong Province of China found that men who have sex with men living with HIV had low willingness to join the online support groups. Background Online support groups afford… read more here.
Keywords: support groups; living hiv; men sex; online support ... See more keywords
Online support groups for family caregivers: A qualitative exploration of social support and engagement
Sign Up to like & getrecommendations! Published in 2024 at "British Journal of Health Psychology"
DOI: 10.1111/bjhp.12764
Abstract: Abstract Background This qualitative research explored family caregivers’ engagement and social support in a single online support group (OSG). It sought to answer two research questions: Q1: Was social support evident in the OSG? If… read more here.
Keywords: support groups; social support; family caregivers; online support ... See more keywords
The internet as a source of support for youth with chronic conditions: A qualitative study
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DOI: 10.1111/cch.12535
Abstract: BACKGROUND Adolescents living with chronic conditions often portray themselves as "healthy" online, yet use the Internet as one of their top sources of health information and social communication. There is a need to develop online… read more here.
Keywords: chronic conditions; information; study; online support ... See more keywords
From Receivers to Givers: Understanding Practice of Reciprocity in an Online Support Community
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DOI: 10.1145/3512938
Abstract: In online communities, members often join as resource receivers and later transition to contributors. This study aims to examine the process of the transition through the lens of reciprocity. In the context of Gomusin Café,… read more here.
Keywords: online support; practice; receivers givers; reciprocity ... See more keywords
Supporting instructional change in mathematics: using social network analysis to understand online support processes following professional development workshops
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DOI: 10.1186/s40594-018-0120-9
Abstract: BackgroundStudies continually show benefits of active learning in college classrooms, yet it is difficult to get faculty to adopt these methods. Particularly challenging is the final step of the instructional change process, “refreezing,” when after… read more here.
Keywords: social network; mathematics; professional development; analysis ... See more keywords
Empathy and redemption: Exploring the narrative transformation of online support for mental health across communities before and after Covid-19
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DOI: 10.1371/journal.pone.0307042
Abstract: This study examines the impact of the COVID-19 pandemic on individuals’ mental health and their online interactions, particularly within Reddit’s mental health communities. By analyzing data from 15 subreddits categorized into mental health and control… read more here.
Keywords: mental health; empathy redemption; redemption exploring; online support ... See more keywords
Protocol for the co-design of an online support service for adults with hearing loss
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DOI: 10.1371/journal.pone.0310521
Abstract: Introduction Untreated hearing loss is reported to negatively impact on an individual’s quality of life, affecting their psychological and physical health and placing them at greater risk of developing dementia. Despite this, hearing loss management… read more here.
Keywords: loss; support service; prototype; hearing loss ... See more keywords