Outcome domains reported in calcium pyrophosphate deposition studies: A scoping review by the OMERACT CPPD working group.
Sign Up to like & getrecommendations! Published in 2020 at "Seminars in arthritis and rheumatism"
DOI: 10.1016/j.semarthrit.2020.05.015
Abstract: INTRODUCTION Although calcium pyrophosphate deposition (CPPD) is common, there are no validated outcome domains and/or measurements for CPPD studies. The aim of this work was to identify domains that have been reported in prior clinical… read more here.
Keywords: domains reported; outcome domains; calcium pyrophosphate; pyrophosphate deposition ... See more keywords
Outcome domains reported by patients, caregivers, healthcare professionals and stakeholders for calcium pyrophosphate deposition (CPPD): A content analysis based on semi-structured qualitative interviews from the OMERACT CPPD working group.
Sign Up to like & getrecommendations! Published in 2021 at "Seminars in arthritis and rheumatism"
DOI: 10.1016/j.semarthrit.2020.09.021
Abstract: INTRODUCTION Although calcium pyrophosphate deposition (CPPD) disease is common, there are no validated outcome measures for clinical research in this condition. The aim of this study was to generate a list of outcome domains as… read more here.
Keywords: outcome; cppd; pyrophosphate deposition; outcome domains ... See more keywords
Exploring meaningful outcome domains of recovery following lower limb amputation and prosthetic rehabilitation: the patient's perspective.
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DOI: 10.1080/09638288.2022.2138989
Abstract: PURPOSE There is currently no consensus regarding what outcome domains to measure following lower limb prosthetic rehabilitation. Prosthetic users have a unique insight into important outcome domains, little is currently known about their critical viewpoint.… read more here.
Keywords: outcome; prosthetic rehabilitation; outcome domains; lower limb ... See more keywords
10 Recommended core outcome domains for tendinopathy derived from a delphi of patients and health care professionals: the groningen ISTS2018 consensus
Sign Up to like & getrecommendations! Published in 2019 at "British Journal of Sports Medicine"
DOI: 10.1136/bjsports-2019-scandinavianabs.10
Abstract: Introduction Tendinopathy (local tendon pain associated with physical activity) is a challenge to treat despite recent advances. One factor contributing to this challenge is our limited ability to synthesise/meta-analyse research findings, which is further compounded… read more here.
Keywords: outcome; patients health; consensus; outcome domains ... See more keywords
Novel mixed-method, inclusive protocol involving global key stakeholders, including carers as experts, to co-develop relevant Caregiver-Reported Outcome Domains (CRODs) in skin disease
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DOI: 10.1136/bmjopen-2022-068893
Abstract: Introduction Ichthyoses comprise a heterogenous group of rare genetic skin disorders that involves the entire skin surface, often with additional syndromic features, and pose many clinical challenges. Without curative intervention, the mainstay of life-long symptom… read more here.
Keywords: outcome; ichthyosis; core outcome; mixed method ... See more keywords
Perspectives of survivors, families and researchers on key outcomes for research in acute respiratory failure
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DOI: 10.1136/thoraxjnl-2017-210234
Abstract: Background There is heterogeneity among the outcomes evaluated in studies of survivors of acute respiratory failure (ARF). Aim To evaluate the importance of specific outcome domains to acute respiratory distress syndrome (ARDS) survivors, their family… read more here.
Keywords: family members; outcome domains; family; acute respiratory ... See more keywords
Which outcome domains are important in palliative care and when? An international expert consensus workshop, using the nominal group technique
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DOI: 10.1177/0269216319854154
Abstract: Background: When capturing patient-level outcomes in palliative care, it is essential to identify which outcome domains are most important and focus efforts to capture these, in order to improve quality of care and minimise collection… read more here.
Keywords: workshop; domains important; outcome domains; palliative care ... See more keywords
Developing consensus on core outcome domains and measurement instruments for assessing effectiveness in perioperative pain management after sternotomy, breast cancer surgery, total knee arthroplasty, and surgery related to endometriosis
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DOI: 10.1186/s13063-020-04665-9
Abstract: Introduction Evidence synthesis of clinical trials requires consistent outcome assessment. For pain management after surgery, inconsistency of effectiveness assessment is still observed. A subproject of IMI-PainCare (Innovative Medicine Initiatives, www.imi-paincare.eu ) aims for identifying core… read more here.
Keywords: measurement instruments; surgery; outcome; consensus ... See more keywords
Defining a Patient-Centred Core Outcome Domain Set for the Assessment of Hearing Rehabilitation With Clients and Professionals
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DOI: 10.3389/fnins.2022.787607
Abstract: Background A variety of outcome domains are currently measured for the assessment of hearing rehabilitation. To date, there is no consensus about which outcome domains should be measured, when they should be measured, and how… read more here.
Keywords: rehabilitation; core outcome; hearing rehabilitation; outcome domains ... See more keywords
Prospective Long-Term Cohort Study of Subjects With First-Episode Psychosis Examining Eight Major Outcome Domains and Their Predictors: Study Protocol
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DOI: 10.3389/fpsyt.2021.643112
Abstract: Background: Our current ability to predict the long-term course and outcome of subjects with a first-episode of psychosis (FEP) is limited. To improve our understanding of the long-term outcomes of psychotic disorders and their determinants,… read more here.
Keywords: long term; outcome domains; first episode; study ... See more keywords