Discordance between pediatric self‐report and parent proxy‐report symptom scores and creation of a dyad symptom screening tool (co‐SSPedi)
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DOI: 10.1002/cam4.3235
Abstract: Symptom Screening in Pediatrics Tool (SSPedi) (age 8‐18 years) and mini‐SSPedi (age 4‐7 years) can be used to self‐report and proxy‐report bothersome symptoms in pediatric patients receiving cancer treatments. There are limitations of sole child… read more here.
Keywords: discordance; symptom; report; self report ... See more keywords
Duchenne Muscular Dystrophy Fatigue Trajectories.
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DOI: 10.1055/a-2101-7860
Abstract: Children with Duchenne Muscular Dystrophy (DMD) are at risk of experiencing fatigue that negatively impacts their health-related quality of life (HRQoL). This study aimed to assess the association between fatigue and HRQoL, by examining fatigue… read more here.
Keywords: duchenne muscular; fatigue; fatigue trajectories; muscular dystrophy ... See more keywords
Establishing Normative Anxiety and Depression Levels With PROMIS Parent Proxy Measures.
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DOI: 10.1177/10731911251385766
Abstract: The PROMIS Parent Proxy Measures for anxiety and depression are brief, validated, and freely available tools for assessing childhood anxiety and depressive symptoms. To improve their interpretability, we recruited a nationally representative sample of U.S.… read more here.
Keywords: anxiety depression; youth; parent proxy; anxiety ... See more keywords