Caring for a child with Bardet-Biedl syndrome: A qualitative study of the parental experiences of daily coping and support.
Sign Up to like & getrecommendations! Published in 2020 at "European journal of medical genetics"
DOI: 10.1016/j.ejmg.2020.103856
Abstract: This study aimed to explore the parental experiences of having a child with Bardet-Biedl syndrome (BBS) and how parents managed to cope with this situation. Five parents of children with BBS (0-18 years old) participated… read more here.
Keywords: bardet biedl; study; biedl syndrome; child bardet ... See more keywords
Parental experiences of subjective well-being in the context of infant sleep problems.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of reproductive and infant psychology"
DOI: 10.1080/02646838.2022.2115471
Abstract: OBJECTIVE This study explored parental experiences of subjective well-being in the context of infant sleep problems. BACKGROUND Although quantitative research has highlighted the deleterious impact of infant sleep problems for parental well-being broadly, little is… read more here.
Keywords: sleep problems; subjective well; infant sleep; experiences subjective ... See more keywords
Parental experiences using the Therapy Outcomes by You (TOBY) application to deliver early intervention to their child with autism
Sign Up to like & getrecommendations! Published in 2019 at "Developmental Neurorehabilitation"
DOI: 10.1080/17518423.2018.1440259
Abstract: ABSTRACT Purpose: As computer-based interventions become commonplace for parents of children with neurodevelopmental disorders, this study sought to understand the experience of using a parent-delivered supplementary early intervention therapy for children with autism spectrum disorder… read more here.
Keywords: intervention; child; early intervention; application ... See more keywords
Parental Experiences of Adolescent Cancer-Related Pain: A Qualitative Study
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Pediatric Psychology"
DOI: 10.1093/jpepsy/jsac047
Abstract: Abstract Objective Despite advancing medical treatments, pain remains a significant outcome of adolescent cancer, as both a problematic and distressing symptom. With adolescents spending substantial periods of time at home during cancer treatment, parents perceive… read more here.
Keywords: cancer related; adolescent cancer; adolescents pain; experiences adolescent ... See more keywords
Parental experiences of the impact of grooming and criminal exploitation of children for county lines drug trafficking.
Sign Up to like & getrecommendations! Published in 2022 at "Journal of public health"
DOI: 10.1093/pubmed/fdac112
Abstract: BACKGROUND County lines is used to describe the illicit drug supply model whereby drugs are transported from one area of the country to another, often by children believed to have been physically and psychologically coerced… read more here.
Keywords: county lines; grooming criminal; impact grooming; parental experiences ... See more keywords
Parental experiences of caring for children who have learning disabilities and procedural anxiety in hospital: An interpretive phenomenological study.
Sign Up to like & getrecommendations! Published in 2022 at "Child: care, health and development"
DOI: 10.1111/cch.12990
Abstract: BACKGROUND Children with learning disabilities (LD) are more likely to have health conditions that require hospital attendance than children without LD. Like all children, they can experience fear and distress related to procedural anxiety. Parents… read more here.
Keywords: parental experiences; anxiety; procedural anxiety; children learning ... See more keywords