Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine.
Sign Up to like & getrecommendations! Published in 2022 at "JAMA network open"
DOI: 10.1001/jamanetworkopen.2022.9085
Abstract: Importance The research agenda in pediatric hospital medicine has seldom considered the perspectives of young people, parents and caregivers, and health care professionals. Their perspectives may be useful in identifying questions on topics for research.… read more here.
Keywords: medicine; hospital medicine; research questions; research ... See more keywords
Identifying Gaps in Oral Care Knowledge, Attitudes, and Practices of Latinx Parents/Caregivers of Children With and Without Autism Spectrum Disorders
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DOI: 10.1089/heq.2020.0078
Abstract: Purpose: This pilot study used data from a survey to examine the knowledge, attitudes, and practices about oral care of Latinx parents/caregivers of children with or without autism spectrum disorder (ASD) to identify gaps to… read more here.
Keywords: oral care; knowledge; parents caregivers; latinx parents ... See more keywords
The influence of hospital‐based intravenous immunoglobulin and home‐based self‐administrated subcutaneous immunoglobulin therapy in young children with primary immunodeficiency diseases on their parents’ / caregivers’ satisfaction
Sign Up to like & getrecommendations! Published in 2019 at "Pediatrics International"
DOI: 10.1111/ped.14119
Abstract: Immunoglobulin replacement has been standard therapy for patients with primary immunodeficiency diseases (PIDD). Intravenous immunoglobin (IVIg) is delivered at the hospital, whereas subcutaneous immunoglobin (SCIg) is used for home‐based treatment. The aim of the study… read more here.
Keywords: immunodeficiency diseases; immunoglobulin; home based; primary immunodeficiency ... See more keywords
P002 Medicine use and optimisation for children and young adults aged 0–18 years old – medication administration and adherence of parent/caregiver and child
Sign Up to like & getrecommendations! Published in 2019 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2019-nppc.12
Abstract: Aim To systematically review all published evidence related to medication administration accuracy and its relation to improving medication adherence among paediatric population. The objectives are to identify, the main issues and challenges that the patients… read more here.
Keywords: medicine; administration; medication administration; parents caregivers ... See more keywords
Experiences and support needs of parents/caregivers of children with cancer through the COVID-19 pandemic in the UK: a longitudinal study
Sign Up to like & getrecommendations! Published in 2022 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2022-324905
Abstract: Objective To explore the experiences, information and support needs of parents/caregivers of children with cancer and how these changed as the COVID-19 pandemic evolved. Design Online surveys containing closed and free-text questions on experiences, information… read more here.
Keywords: covid pandemic; support; caregivers children; support needs ... See more keywords
Protocol of a cluster randomised controlled trial evaluating the effectiveness of an online parenting intervention for promoting oral health of 2–6 years old Australian children
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DOI: 10.1136/bmjopen-2021-056269
Abstract: Introduction Dental decay is a major problem among Australian children. It can be prevented through good self-care and limiting sugar intake, but many parents/caregivers lack the skills and confidence to help their children adopt these… read more here.
Keywords: health; oral health; australian children; trial ... See more keywords
Transitioning between paediatric and adult healthcare services: a qualitative study of the experiences of young people with spinal cord injuries and parents/caregivers
Sign Up to like & getrecommendations! Published in 2022 at "BMJ Open"
DOI: 10.1136/bmjopen-2022-065718
Abstract: Objectives Healthcare transition (HCT) interventions are pivotal to paediatric rehabilitation. However, there has been limited research focusing on HCT in young people with spinal cord injury (SCI). To date, little has been reported on key… read more here.
Keywords: young people; people sci; paediatric adult; adult healthcare ... See more keywords
Parents’/caregivers’ fears and concerns about their child’s epilepsy: A scoping review
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DOI: 10.1371/journal.pone.0274001
Abstract: Background Childhood epilepsy is a serious and common neurological condition and can have life-long consequences and its impact can pervade all aspects of family life. Whilst the medical management of seizures is important, much of… read more here.
Keywords: child epilepsy; review; fears concerns; caregivers fears ... See more keywords
Developing Parenting Guidelines to Support Transgender and Gender Diverse Children's Well-being.
Sign Up to like & getrecommendations! Published in 2022 at "Pediatrics"
DOI: 10.1542/peds.2021-055347
Abstract: OBJECTIVES Parents and caregivers' responses to their child's gender identity or expression play a pivotal role in their mental health. Despite increasing visibility of transgender and gender diverse (TGD) children, few scientific resources exist to… read more here.
Keywords: gender; gender diverse; transgender gender; parents caregivers ... See more keywords
Transition from parents to caregivers of a child with type 1 Diabetes Mellitus: a scoping review
Sign Up to like & getrecommendations! Published in 2023 at "Revista Brasileira de Enfermagem"
DOI: 10.1590/0034-7167-2022-0201
Abstract: ABSTRACT Objectives: to map and summarize the existing scientific evidence on parents’ transition experience to exercise the caregiver role of a child with 1DM, identifying gaps in knowledge of this experience. Methods: a scoping review… read more here.
Keywords: transition parents; scoping review; transition; experience ... See more keywords
OUR CHILD IS DYING: EXPLORING THE EXPERIENCES, CHALLENGES AND COPING MECHANISMS OF MALAYSIAN PARENTS AS CAREGIVERS OF A CHILD WITH CANCER
Sign Up to like & getrecommendations! Published in 2019 at "Journal of Southeast Asian Studies"
DOI: 10.22452/jati.vol24no2.5
Abstract: Parents as caregivers to paediatric cancer patients face various challenges. This paper highlights the characteristics, caregiving tasks, resources, and other role demands/stressors experienced by a pair of parents as primary family caregivers of a child… read more here.
Keywords: child cancer; child dying; parents caregivers; caregivers child ... See more keywords