Parents experience of using "cold" facilities at a children's hospice after the death of their baby: A qualitative study.
Sign Up to like & getrecommendations! Published in 2020 at "Death studies"
DOI: 10.1080/07481187.2020.1836070
Abstract: There is a growing movement in children's hospice care to offer families time with their baby after death through use of a "cold cot"; however, there is very limited research in this area. We interviewed… read more here.
Keywords: death; parents experience; children hospice; experience using ... See more keywords
Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders
Sign Up to like & getrecommendations! Published in 2020 at "International Journal of Qualitative Studies on Health and Well-being"
DOI: 10.1080/17482631.2020.1725362
Abstract: ABSTRACT Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and… read more here.
Keywords: rare neurodevelopmental; children rare; parents experience; caring children ... See more keywords
Transitional Objects to Faciliate Grieving Following Perinatal Loss
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DOI: 10.1097/anc.0000000000000429
Abstract: Background: Parents who experience a perinatal loss often leave the hospital with empty arms and no tangible mementos to validate the parenting experience. Opportunities to create parenting experiences with transitional objects exist following the infant's… read more here.
Keywords: loss transitional; parents experience; following perinatal; perinatal loss ... See more keywords
Parent immigration stress predicts youth externalizing behavior trajectories among Latino families in an emerging immigrant context.
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DOI: 10.1111/famp.12726
Abstract: According to ecodevelopmental and social learning models, Latino immigrant parents experience considerable stress associated with the immigration process, and such immigration-related stress is theorized to influence behavioral outcomes among their youth. Using a three-year longitudinal… read more here.
Keywords: immigration stress; parents experience; immigration; among latino ... See more keywords
A systematic integrative review of parents' experience and perception of sleep when they stay overnight in the hospital together with their sick children.
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DOI: 10.1111/jocn.15134
Abstract: AIMS AND OBJECTIVES To elucidate knowledge available on parents' experience and perception of sleep when they stay overnight in hospital together with their sick children. BACKGROUND In Nordic countries, children are entitled to have at… read more here.
Keywords: parents experience; perception sleep; hospital; sleep ... See more keywords
Parents' experience of extended viewing in a paediatric hospice: a qualitative study.
Sign Up to like & getrecommendations! Published in 2023 at "International journal of palliative nursing"
DOI: 10.12968/ijpn.2023.29.1.34
Abstract: BACKGROUND The rising prevalence of life-limiting conditions in children and young people warrants an evaluation of paediatric palliative care, hospice services and delivered care. AIM First, this study aimed to develop a deeper understanding of… read more here.
Keywords: parents experience; hospice; care; experience extended ... See more keywords
Improving Parents' Experience in the Pediatric Emergency Waiting Room: Researching the Most Optimal Design for an Information Tool
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DOI: 10.3233/shti220192
Abstract: To improve parents' experience in the pediatric emergency waiting room by means of an information tool, the information needs of parents and pediatric patients need to be determined. It is necessary to find an optimal… read more here.
Keywords: information; parents experience; pediatric emergency; information tool ... See more keywords