Delivering the Diagnosis of Sex Chromosome Aneuploidy: Experiences and Preferences of Parents and Individuals
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DOI: 10.1177/0009922818817310
Abstract: Increased prenatal diagnoses of sex chromosome aneuploidies (SCAs) amid limited knowledge of their prognoses heighten the need to understand how families contend with the implications of an SCA. To explore the experiences of parents and… read more here.
Keywords: parents individuals; sex chromosome; diagnosis; delivering diagnosis ... See more keywords
Identifying the Correlates and Barriers of Future Planning Among Parents of Individuals With Intellectual and Developmental Disabilities.
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DOI: 10.1352/1934-9556-56.2.90
Abstract: Although individuals with intellectual and developmental disabilities (IDD) are living longer lives, fewer than half of parents of individuals with IDD conduct future planning. The correlates and barriers to future planning must be identified to… read more here.
Keywords: parents individuals; individuals intellectual; intellectual developmental; future planning ... See more keywords