De-identified genomic data sharing: the research participant perspective
Sign Up to like & getrecommendations! Published in 2017 at "Journal of Community Genetics"
DOI: 10.1007/s12687-017-0300-1
Abstract: Combining datasets into larger and separate datasets is becoming increasingly common, and personal identifiers are often removed in order to maintain participant anonymity. Views of research participants on the use of de-identified data in large… read more here.
Keywords: research; genetics; identified genomic; participant ... See more keywords
Improved Patient Satisfaction With Skin After Treatment of Cheek Skin Roughness and Fine Lines With VYC-12L: Participant-Reported Outcomes From a Prospective, Randomized Study.
Sign Up to like & getrecommendations! Published in 2023 at "Aesthetic surgery journal"
DOI: 10.1093/asj/sjad111
Abstract: BACKGROUND VYC-12L is a hyaluronic acid filler to improve skin quality. A prospective study showed safety and effectiveness of VYC-12L for improving cheek skin smoothness and fine lines. OBJECTIVES To report participant-reported outcomes, subgroup analyses,… read more here.
Keywords: participant; vyc 12l; cheek skin; treatment ... See more keywords
COVID times make ‘deep listening’ explicit: changing the space between interviewer and participant
Sign Up to like & getrecommendations! Published in 2021 at "Qualitative Research"
DOI: 10.1177/14687941211027780
Abstract: This article draws on the research project Post-abortion narratives shared by Perth women via face-to-face interviews. The project was subsequently disrupted by the arrival of COVID-19 in Perth, Australia, making it necessary to conduct interviews… read more here.
Keywords: space; interviewer; covid; participant ... See more keywords
Practice-based qualitative research: Participant experiences of walk-in counselling and traditional counselling
Sign Up to like & getrecommendations! Published in 2017 at "Qualitative Social Work"
DOI: 10.1177/1473325016637910
Abstract: Walk-in single session counselling is becoming a more widely used model for delivering mental health services across Ontario. This paper reports findings from the qualitative phase of a mixed method study, exploring the experiences of… read more here.
Keywords: walk counselling; research; participant; model ... See more keywords
Working towards consensus on methods used to elicit participant-reported safety data in uncomplicated malaria clinical drug studies: a Delphi technique study
Sign Up to like & getrecommendations! Published in 2017 at "Malaria Journal"
DOI: 10.1186/s12936-017-1699-x
Abstract: AbstractBackground Eliciting adverse event (AE) and non-study medication data reports from clinical research participants is integral to evaluating drug safety. However, using different methods to question participants yields inconsistent results, compromising the interpretation, comparison and… read more here.
Keywords: non study; consensus; safety; study ... See more keywords
MSK eConsent: Digitalizing the informed consent process to improve participant engagement and understanding.
Sign Up to like & getrecommendations! Published in 2020 at "Journal of Clinical Oncology"
DOI: 10.1200/jco.2020.38.15_suppl.2066
Abstract: 2066Background: eConsent was developed to digitize the research participant consenting experience with an educational engagement model. The eConsent platform tiers consent document content in an ea... read more here.
Keywords: econsent digitalizing; participant; msk econsent; digitalizing informed ... See more keywords
Non-linear effects and effect modification at the participant-level in IPD meta-analysis part 1: Analysis methods are often substandard.
Sign Up to like & getrecommendations! Published in 2023 at "Journal of clinical epidemiology"
DOI: 10.2139/ssrn.4333137
Abstract: OBJECTIVE To review analysis methods used for linear effect modification (LEM), non-linear associations (NL) and non-linear effect modification (NLEM) at the participant-level in individual participant data meta-analyses (IPDMA). STUDY DESIGN AND SETTING We searched Medline,… read more here.
Keywords: analysis; ipdma; effect modification; participant ... See more keywords
Formative Evaluation of Participant Experience With Mobile eConsent in the App-Mediated Parkinson mPower Study: A Mixed Methods Study
Sign Up to like & getrecommendations! Published in 2017 at "JMIR mHealth and uHealth"
DOI: 10.2196/mhealth.6521
Abstract: Background To fully capitalize on the promise of mobile technology to enable scalable, participant-centered research, we must develop companion self-administered electronic informed consent (eConsent) processes. As we do so, we have an ethical obligation to… read more here.
Keywords: research; self administered; study; participant ... See more keywords
The Effectiveness of Mirror Therapy on Upper Limb Function in Stroke Patients: A Single Case Experimental Design
Sign Up to like & getrecommendations! Published in 2019 at "Iranian Rehabilitation Journal"
DOI: 10.32598/irj.17.3.285
Abstract: ObjectivesTo assess the effectiveness of mirror therapy (MT) on upper limb (UL) function of sub-acute stroke patients.MethodsThis study is a single case experimental design with two participants. Twenty minutes of MT were implemented four times… read more here.
Keywords: therapy upper; mirror therapy; participant; effectiveness mirror ... See more keywords
Brain Network Constancy and Participant Recognition: an Integrated Approach to Big Data and Complex Network Analysis
Sign Up to like & getrecommendations! Published in 2020 at "Frontiers in Psychology"
DOI: 10.3389/fpsyg.2020.01003
Abstract: With the development of big data sharing and data standardization, electroencephalogram (EEG) data are increasingly used in the exploration of human cognitive behavior. Most of the existing studies focus on the changes of human brain… read more here.
Keywords: big data; network; brain network; participant ... See more keywords