Writing the worlds of genomic medicine: experiences of using participatory-writing to understand life with rare conditions
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DOI: 10.1136/medhum-2021-012346
Abstract: The diagnostic and treatment possibilities made possible by the development and subsequent mainstreaming of clinical genomics services have the potential to profoundly change the experiences of families affected by rare genetic conditions. Understanding the potentials… read more here.
Keywords: participatory writing; genomic medicine; participatory; life ... See more keywords