Development of video animations to encourage patient-driven deprescribing: A Team Alice Study.
Sign Up to like & getrecommendations! Published in 2021 at "Patient education and counseling"
DOI: 10.1016/j.pec.2021.03.041
Abstract: OBJECTIVE Patient-driven deprescribing initiatives aim to increase patient knowledge and strengthen self-advocacy skills. This article describes the development of three animated videos designed to educate older adults about unsafe prescribing and medication harm, based on the… read more here.
Keywords: video; medication; patient driven; development ... See more keywords
A model for building a national, patient-driven database to track contraceptive use in women with rare diseases.
Sign Up to like & getrecommendations! Published in 2021 at "Journal of the American Medical Informatics Association : JAMIA"
DOI: 10.1093/jamia/ocab224
Abstract: Data on the safety and effectiveness of contraception among women with rare diseases are critical and sorely lacking. To fill this gap, we propose a national, patient-driven database that tracks contraceptive safety and effectiveness among… read more here.
Keywords: rare diseases; women rare; national patient; patient driven ... See more keywords
Patient-driven innovations reported in peer-reviewed journals: a scoping review
Sign Up to like & getrecommendations! Published in 2022 at "BMJ Open"
DOI: 10.1136/bmjopen-2021-053735
Abstract: Background Awareness of patients’ innovative capabilities is increasing, but there is limited knowledge regarding the extent and nature of patient-driven innovations in the peer-reviewed literature. Objectives The objective of the review was to answer the… read more here.
Keywords: patient driven; review; innovations reported; driven innovations ... See more keywords
Objectives and outcomes of patient-driven innovations published in peer-reviewed journals: a qualitative analysis of publications included in a scoping review.
Sign Up to like & getrecommendations! Published in 2023 at "BMJ open"
DOI: 10.1136/bmjopen-2022-071363
Abstract: OBJECTIVES The aim of this study was to gain a deeper understanding of the objectives and outcomes of patient-driven innovations that have been published in the scientific literature, focusing on (A) the unmet needs that… read more here.
Keywords: patient driven; review; driven innovations; outcomes patient ... See more keywords
A Patient-Driven Model for Cancer Research.
Sign Up to like & getrecommendations! Published in 2018 at "Cancer discovery"
DOI: 10.1158/2159-8290.cd-nb2018-030
Abstract: The Metastatic Prostate Cancer Project aims to gather genomic and phenotypic data from large numbers of men with prostate cancer, creating a database that scientists can use in their own research efforts. Any man with… read more here.
Keywords: model cancer; research; cancer research; patient driven ... See more keywords
Developing “My Asthma Diary”: a process exemplar of a patient-driven arts-based knowledge translation tool
Sign Up to like & getrecommendations! Published in 2018 at "BMC Pediatrics"
DOI: 10.1186/s12887-018-1155-2
Abstract: BackgroundAlthough it is well established that family-centered education is critical to managing childhood asthma, the information needs of parents of children with asthma are not being met through current educational approaches. Patient-driven educational materials that… read more here.
Keywords: information; knowledge translation; process; translation ... See more keywords
Patient Driven Education: A novel approach to participant engagement in the research process
Sign Up to like & getrecommendations! Published in 2018 at "Pediatrics"
DOI: 10.1542/peds.142.1_meetingabstract.361
Abstract: Background The ethical principle, respect for persons, requires that subjects provide voluntary, informed consent prior to participation in research. In practice, there are often communication barriers that lead to misunderstandings and misconceptions during the informed… read more here.
Keywords: research; education novel; novel approach; driven education ... See more keywords
“A Guide to Gutsy Living”: Patient-Driven Development of a Pediatric Ostomy Toolkit
Sign Up to like & getrecommendations! Published in 2018 at "Pediatrics"
DOI: 10.1542/peds.2017-2789
Abstract: * Abbreviations: IBD — : inflammatory bowel disease ICN — : ImproveCareNow PAC — : Patient Advisory Council QI — : quality improvement As patients (J.G.D. and A.J.) who have lived with pediatric-onset inflammatory bowel… read more here.
Keywords: driven development; gutsy living; living patient; guide gutsy ... See more keywords