Patient organisations, venture philanthropy and the ethics of pursuing cures over care
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DOI: 10.1136/jme-2025-110875
Abstract: Patient organisations aim to advance the interests of patient populations living with various diseases, disabilities and health conditions. However, because the members of a given patient population often have varied or even conflicting interests, the… read more here.
Keywords: patient organisations; venture philanthropy; cures care; research ... See more keywords
Patient advocate perspectives on involvement in HTA: an international snapshot
Sign Up to like & getrecommendations! Published in 2017 at "Research Involvement and Engagement"
DOI: 10.1186/s40900-016-0052-9
Abstract: Plain English summaryA number of health technology assessment (HTA) organisations have developed processes to engage patients in the assessment of new health technologies such as pharmaceuticals, diagnostic tests, devices or medical procedures. Typically, this involves… read more here.
Keywords: patient advocates; hta agencies; patient organisations; hta ... See more keywords