Patient Perspectives on Clinic Note Transparency Within Dermatology.
Sign Up to like & getrecommendations! Published in 2023 at "JAMA dermatology"
DOI: 10.1001/jamadermatol.2023.0086
Abstract: This survey study assesses dermatology patient experiences with viewing online medical records and seeks to identify areas for improvement. read more here.
Keywords: perspectives clinic; clinic note; dermatology; note transparency ... See more keywords
Patient Perspectives About Decisions to Share Medical Data and Biospecimens for Research
Sign Up to like & getrecommendations! Published in 2019 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2019.9550
Abstract: This survey study examines the association between various presentations of consent forms and differences in electronic health record and biospecimen sharing rates among patients. read more here.
Keywords: patient perspectives; perspectives decisions; share medical; data biospecimens ... See more keywords
Patient Perspectives on Care Transitions From Hospital to Home
Sign Up to like & getrecommendations! Published in 2022 at "JAMA Network Open"
DOI: 10.1001/jamanetworkopen.2022.10774
Abstract: This survey study evaluates patient perspectives on care transition experiences from hospitals or skilled nursing facilities to home. read more here.
Keywords: perspectives care; hospital home; care transitions; transitions hospital ... See more keywords
Patient perspectives on adapting meaning-centered psychotherapy in advanced cancer for the Chinese immigrant population
Sign Up to like & getrecommendations! Published in 2019 at "Supportive Care in Cancer"
DOI: 10.1007/s00520-019-4638-2
Abstract: The Chinese immigrant community faces multiple obstacles to effective cancer support and psychosocial care post diagnosis. Meaning-centered psychotherapy (MCP) is an empirically based treatment (EBT) that has been found to significantly reduce psychological distress while… read more here.
Keywords: patient perspectives; meaning centered; chinese immigrant; cancer ... See more keywords
Patient Perspectives on Gene Transfer Therapy for Sickle Cell Disease
Sign Up to like & getrecommendations! Published in 2017 at "Advances in Therapy"
DOI: 10.1007/s12325-017-0587-7
Abstract: IntroductionSickle cell disease (SCD) is a chronic genetic disease with high morbidity and early mortality; it affects nearly 100,000 individuals in the USA. Bone marrow transplantation, the only curative treatment, is available to less than… read more here.
Keywords: transfer therapy; patient perspectives; disease; cell disease ... See more keywords
Using Social Media Data in Routine Pharmacovigilance: A Pilot Study to Identify Safety Signals and Patient Perspectives
Sign Up to like & getrecommendations! Published in 2017 at "Pharmaceutical Medicine"
DOI: 10.1007/s40290-017-0186-6
Abstract: IntroductionSocial media is recognized as a new source of patient perspectives and data on adverse events (AEs) in pharmacovigilance (PV). Questions remain about how social media data can supplement routine PV surveillance.ObjectivesThe objectives of this… read more here.
Keywords: social media; patient perspectives; analysis; media data ... See more keywords
Adult patient perspectives on phenylketonuria care: Highlighting the need for dedicated adult management and services.
Sign Up to like & getrecommendations! Published in 2019 at "European journal of medical genetics"
DOI: 10.1016/j.ejmg.2019.103818
Abstract: Phenylketonuria (PKU) is an autosomal recessive metabolic disorder characterized by an inability to metabolize the amino acid phenylalanine (Phe). If left untreated, an accumulation of Phe results in neurodevelopmental, neurological and psychological impairments. Advancements in… read more here.
Keywords: patient perspectives; adult patient; adult; adult pku ... See more keywords
Patient perspectives on neuromyelitis optica spectrum disorders: Data from the PatientsLikeMe online community.
Sign Up to like & getrecommendations! Published in 2017 at "Multiple sclerosis and related disorders"
DOI: 10.1016/j.msard.2017.07.014
Abstract: BACKGROUND Few studies have evaluated patient perspectives on neuromyelitis optica (NMO) and NMO spectrum disorder (NMOSD). OBJECTIVE Describe patient-reported clinical and treatment experience in NMOSD and compare disease characteristics of NMOSD with those of multiple… read more here.
Keywords: patient perspectives; community; spectrum; neuromyelitis optica ... See more keywords
Patient Perspectives on Videoconferencing-Based Treatment for Alcohol Use Disorders
Sign Up to like & getrecommendations! Published in 2017 at "Alcoholism Treatment Quarterly"
DOI: 10.1080/07347324.2017.1348785
Abstract: ABSTRACT The aim of the study was to describe patient perspectives on optional videoconferencing-based treatment for alcohol use disorders. The study was a qualitative descriptive study based on semistructured interviews with 27 patients using an… read more here.
Keywords: patient perspectives; treatment; based treatment; treatment alcohol ... See more keywords
Biologic use in hidradenitis suppurativa: patient perspectives and barriers
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Dermatological Treatment"
DOI: 10.1080/09546634.2022.2089336
Abstract: Abstract Introduction Hidradenitis suppurativa (HS) is an inflammatory dermatosis for which the treatment paradigm is rapidly expanding. We aimed to identify HS patient perspectives and barriers on biologics. Methods An anonymous survey was distributed between… read more here.
Keywords: patient perspectives; hidradenitis suppurativa; biologic use; perspectives barriers ... See more keywords
Patient perspectives of airway clearance techniques in bronchiectasis.
Sign Up to like & getrecommendations! Published in 2022 at "Physiotherapy theory and practice"
DOI: 10.1080/09593985.2022.2126741
Abstract: INTRODUCTION While airway clearance techniques (ACTs) are recommended for individuals with bronchiectasis, data suggests the use of and adherence to ACTs is poor. OBJECTIVE This study aimed to identify patient perceptions regarding ACTs, the barriers… read more here.
Keywords: adherence; airway clearance; perspectives airway; clearance techniques ... See more keywords