Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
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DOI: 10.1186/s13023-021-01703-w
Abstract: Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for… read more here.
Keywords: patients associations; role patients; connective tissue; net group ... See more keywords