How are PCORI-funded researchers engaging patients in research and what are the ethical implications?
Sign Up to like & getrecommendations! Published in 2017 at "AJOB Empirical Bioethics"
DOI: 10.1080/23294515.2016.1206045
Abstract: ABSTRACT Background: Despite growing interest in patient engagement in research, there are few empirical investigations of the nature of engagement and its effects. This information is important, not only to inform practical decisions researchers and… read more here.
Keywords: research; patients research; engaging patients; patients engaged ... See more keywords
“What if this is my chance to save my life?” A semistructured interview study on the motives and experiences of end‐stage renal disease patients who engaged in public solicitation of a living kidney donor
Sign Up to like & getrecommendations! Published in 2018 at "Transplant International"
DOI: 10.1111/tri.13095
Abstract: The increase in patients using public solicitation (PS) to find a living kidney donor has generated a debate about the ethical complexities of PS. To investigate why patients engaged in PS and what they experienced… read more here.
Keywords: public solicitation; patients engaged; kidney donor; end stage ... See more keywords