‘Engagement’ of patients and healthcare professionals in regulatory pharmacovigilance: establishing a conceptual and methodological framework
Sign Up to like & getrecommendations! Published in 2019 at "European Journal of Clinical Pharmacology"
DOI: 10.1007/s00228-019-02705-1
Abstract: BackgroundEngagement of patients and healthcare professionals is increasingly considered as fundamental to pharmacovigilance and risk minimisation activities. Few empirical studies of engagement exist and a lack of explicit conceptualisations impedes effective measurement, research and the… read more here.
Keywords: regulatory pharmacovigilance; patients healthcare; healthcare professionals; engagement ... See more keywords
Gaps in communication between cancer patients and healthcare providers: symptom distress and patients’ intentions to disclose
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DOI: 10.1007/s00520-018-4442-4
Abstract: PurposeGood communication between patients and healthcare professionals (HCPs) is an important contributor to patient well-being. Few studies have focused on the gaps in communication between patients and HCPs about symptoms. This study examined patients’ perspectives… read more here.
Keywords: communication; symptom distress; patients healthcare; gaps communication ... See more keywords
Home-Based Treatment with Immunoglobulins: an Evaluation from the Perspective of Patients and Healthcare Professionals
Sign Up to like & getrecommendations! Published in 2018 at "Journal of Clinical Immunology"
DOI: 10.1007/s10875-018-0566-z
Abstract: PurposeThis study aims to evaluate home-based treatment with immunoglobulin (IgG) by assessing and comparing the experiences and perceived value of patients and healthcare professionals, and potential differences in experiences between subcutaneous (SCIg) and intravenous (IVIg)… read more here.
Keywords: home; home based; treatment; patients healthcare ... See more keywords
Rare liver disease patients' and healthcare providers' view on mobile app requirements and functionality: a single center survey for the European Reference Network on Hepatological diseases (ERN RARE-LIVER).
Sign Up to like & getrecommendations! Published in 2021 at "Clinics and research in hepatology and gastroenterology"
DOI: 10.1016/j.clinre.2021.101760
Abstract: BACKGROUND More patient data are needed to improve research on rare liver diseases. Mobile health apps enable an exhaustive data collection. Therefore, the European Reference Network on Hepatological diseases (ERN RARE-LIVER) intends to implement an… read more here.
Keywords: healthcare providers; liver diseases; app; patients healthcare ... See more keywords
Exploring patients’ and healthcare professionals’ experiences of patient‐witnessed resuscitation: A qualitative study protocol
Sign Up to like & getrecommendations! Published in 2019 at "Journal of Advanced Nursing"
DOI: 10.1111/jan.13824
Abstract: AIM The aim of this study was to explore the experiences of patients and healthcare professionals regarding patients witnessing resuscitation on another patient in hospital clinical wards. DESIGN Phenomenological qualitative study. METHODS Participants will be… read more here.
Keywords: patients healthcare; study; resuscitation; witnessed resuscitation ... See more keywords
Exploring what is important during burn recovery: a qualitative study investigating priorities of patients and healthcare professionals over time
Sign Up to like & getrecommendations! Published in 2023 at "BMJ Open"
DOI: 10.1136/bmjopen-2021-059528
Abstract: Objectives This qualitative study aimed to investigate: (1) priorities of patients and healthcare professionals during recovery from a burn injury, (2) how priorities change over time and (3) how priorities map to outcomes currently reported… read more here.
Keywords: time; patients healthcare; burn injury; recovery ... See more keywords
Discussing results of patient-reported outcome measures (PROMs) between patients and healthcare professionals in routine dialysis care: a qualitative study
Sign Up to like & getrecommendations! Published in 2022 at "BMJ Open"
DOI: 10.1136/bmjopen-2022-067044
Abstract: Objectives Patient-reported outcome measures (PROMs) provide insight into patients’ experienced health and needs, and can improve patient–professional communication. However, little is known about how to discuss PROM results. This study aimed to provide in-depth knowledge… read more here.
Keywords: patients healthcare; dialysis; care; prom results ... See more keywords
Listen to my story: Contribution of patients to their healthcare through effective communication with doctors
Sign Up to like & getrecommendations! Published in 2020 at "Health Services Management Research"
DOI: 10.1177/0951484820952308
Abstract: In the era of patient centered healthcare, patients are educated, more aware and demanding than ever. However, there is a significant misalignment between patients and doctors due to improper communication resulting in broken patient-doctor therapeutic… read more here.
Keywords: communication; contribution; patients healthcare; effective communication ... See more keywords
Patients’ and healthcare professionals’ perspectives on the idiopathic pulmonary fibrosis care journey: a qualitative study
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DOI: 10.1186/s12890-021-01431-8
Abstract: Background Idiopathic pulmonary fibrosis (IPF) highly impacts patients on several life dimensions and challenges healthcare practices in providing high-quality care. Consequently, it is crucial to establish integrated care processes, maximizing patient value and patients’ individual… read more here.
Keywords: idiopathic pulmonary; patients healthcare; pulmonary fibrosis; healthcare professionals ... See more keywords
Partnering with patients in healthcare research: a scoping review of ethical issues, challenges, and recommendations for practice
Sign Up to like & getrecommendations! Published in 2020 at "BMC Medical Ethics"
DOI: 10.1186/s12910-020-0460-0
Abstract: Background Partnering with patients in healthcare research now benefits from a strong rationale and is encouraged by funding agencies and research institutions. However, this new approach raises ethical issues for patients, researchers, research professionals and… read more here.
Keywords: issues challenges; research; partnering patients; patients healthcare ... See more keywords
Patients and healthcare professionals perspectives on creating a chronic pain support line in Portugal: A qualitative study protocol
Sign Up to like & getrecommendations! Published in 2022 at "PLoS ONE"
DOI: 10.1371/journal.pone.0273213
Abstract: Chronic pain affects almost 38% of the Portuguese adult population, with high costs for both patients and society. Those who suffer with chronic pain frequently complain of feeling misunderstood and of lack of support. These… read more here.
Keywords: pain; support line; patients healthcare; chronic pain ... See more keywords