Educational needs of people with type 1 diabetes mellitus and their parents: A cross-sectional study.
Sign Up to like & getrecommendations! Published in 2023 at "Nursing open"
DOI: 10.1002/nop2.1737
Abstract: AIMS To investigate the educational needs of type 1 diabetes patients and their parents. DESIGN A cross-sectional design was employed. METHODS Data were collected via an online survey and analysed by descriptive statistics and an… read more here.
Keywords: cross sectional; management; type diabetes; educational needs ... See more keywords
Patients’ and parents’ views regarding supportive care in childhood cancer
Sign Up to like & getrecommendations! Published in 2017 at "Supportive Care in Cancer"
DOI: 10.1007/s00520-017-3723-7
Abstract: PurposeIntensive therapies in pediatric malignancies increased survival rates but also occurrence of treatment-related morbidities. Therefore, supportive care fulfills an increasingly important role. In planning development of guidelines with incorporation of shared decision making, we noticed… read more here.
Keywords: supportive care; patients parents; views regarding; decision making ... See more keywords
Pain control following tonsillectomy in children: A survey of patients.
Sign Up to like & getrecommendations! Published in 2017 at "International journal of pediatric otorhinolaryngology"
DOI: 10.1016/j.ijporl.2017.10.016
Abstract: OBJECTIVE This prospective study aimed to survey pediatric patients and their parents after tonsillectomy to assess their pain management utilization and satisfaction. INTRODUCTION Tonsillectomy is the second most common surgical procedure performed in pediatric patients.… read more here.
Keywords: patients parents; survey; pain control; hydrocodone ... See more keywords
Involvement of patients and parents in research undertaken by the Australian and New Zealand Fontan Registry
Sign Up to like & getrecommendations! Published in 2017 at "Cardiology in the Young"
DOI: 10.1017/s1047951117001494
Abstract: Abstract Research that is closely connected with the population it is studying and in which the translational value to healthcare is high is a laudable goal, but it is not often achieved. The Australian and… read more here.
Keywords: research; new zealand; patients parents; zealand fontan ... See more keywords
Exploring the Connectivity Paradox: How the Sociophysical Environment of Telehealth Shapes Adolescent Patients' and Parents' Perceptions of the Patient-Clinician Relationship.
Sign Up to like & getrecommendations! Published in 2022 at "Health communication"
DOI: 10.1080/10410236.2022.2124056
Abstract: Even before the widespread transition to telehealth as a result of COVID-19, there was a considerable amount of research exploring its value and impact. However, telehealth research with adolescent patients is somewhat limited, with most… read more here.
Keywords: environment telehealth; sociophysical environment; telehealth; patients parents ... See more keywords
"It is good to have a target in mind": Qualitative views of patients and parents informing a treat to target clinical trial in JSLE.
Sign Up to like & getrecommendations! Published in 2021 at "Rheumatology"
DOI: 10.1093/rheumatology/keab173
Abstract: OBJECTIVE We sought to explore patient and parental views on treatment targets, outcome measures and study designs being considered for a future juvenile-onset systemic lupus erythematosus (JSLE) treat to target (T2T) study. METHODS Topic guided,… read more here.
Keywords: treatment; patients parents; treat target; target ... See more keywords
Patients' and parents' satisfaction to improve patient care in JIA: factors determining acceptable symptom state measured with JAMAR.
Sign Up to like & getrecommendations! Published in 2022 at "Rheumatology"
DOI: 10.1093/rheumatology/keac658
Abstract: OBJECTIVES To identify factors associated with patients' and parents' reported satisfaction in juvenile idiopathic arthritis (JIA), measured with the juvenile arthritis child and parent acceptable symptom state (JA-CASS and JA-PASS, respectively). METHODS A prospective cohort… read more here.
Keywords: state; acceptable symptom; disease; jamar ... See more keywords
Pain is the Greatest Preoperative Concern for Patients and Parents Before Posterior Spinal Fusion for Adolescent Idiopathic Scoliosis
Sign Up to like & getrecommendations! Published in 2017 at "SPINE"
DOI: 10.1097/brs.0000000000002147
Abstract: Study Design. Prospective cross-sectional study. Objective. To evaluate patients’ and parents’ concerns so they can be addressed with appropriate preoperative counseling. Summary of Background Data. Despite much research on outcomes for posterior spinal fusion (PSF)… read more here.
Keywords: spinal fusion; idiopathic scoliosis; adolescent idiopathic; patients parents ... See more keywords
Dietary Beliefs in Children and Adolescents with Inflammatory Bowel Disease and their Parents
Sign Up to like & getrecommendations! Published in 2022 at "Journal of Pediatric Gastroenterology and Nutrition"
DOI: 10.1097/mpg.0000000000003527
Abstract: Objectives: Patients with inflammatory bowel disease (IBD) may have diet-related beliefs that lead to restrictive dietary behaviours. This study aimed to evaluate dietary beliefs in young patients with IBD and their parents and the presence… read more here.
Keywords: patients ibd; dietary beliefs; inflammatory bowel; bowel disease ... See more keywords
OP0157-HPR Agreement between jia patients and parents on disease perception analysed by the norwegian version of the jamar questionnaire
Sign Up to like & getrecommendations! Published in 2018 at "Annals of the Rheumatic Diseases"
DOI: 10.1136/annrheumdis-2018-eular.2509
Abstract: Background Juvenile Idiopathic Arthritis (JIA) has a broad impact on the child and family life. There is an increasing interest in the importance and recognition of the value of parent/patient reported outcome (PRO). Juvenile Arthritis… read more here.
Keywords: agreement; jia; norwegian version; patients parents ... See more keywords
Patient and public involvement in paediatric medical education
Sign Up to like & getrecommendations! Published in 2022 at "Archives of Disease in Childhood"
DOI: 10.1136/archdischild-2021-322443
Abstract: The benefits of involving patients and the public in medical education are well documented, however there is a need to further explore how this can be translated to the setting of paediatric medical education. This… read more here.
Keywords: paediatric patients; involvement paediatric; education; paediatric medical ... See more keywords