[Requirements for outpatient care after implantation of a ventricular assist device : Views of patients and their relatives].
Sign Up to like & getrecommendations! Published in 2019 at "Herz"
DOI: 10.1007/s00059-017-4636-4
Abstract: Ventricular assist device (VAD) implantation has developed into a well-established option when conservative treatment of terminal heart failure has been exhausted. Figures from 2015 make this clear: only 283 heart transplantations were performed nationwide but 959… read more here.
Keywords: vad; implantation; ventricular assist; care ... See more keywords
What to do when patients and physicians disagree? Qualitative research among physicians with different working experiences
Sign Up to like & getrecommendations! Published in 2020 at "European Geriatric Medicine"
DOI: 10.1007/s41999-020-00312-3
Abstract: Aim To understand the challenges experienced by physicians when their opinion on medical decisions differ from those of patients or relatives. Findings Physicians felt uncomfortable when there was disagreement between themselves and patients or relatives.… read more here.
Keywords: decision; different working; working experiences; patients relatives ... See more keywords
The experience of non-conveyance following emergency medical service triage from the perspective of patients and their relatives: A qualitative study.
Sign Up to like & getrecommendations! Published in 2020 at "International emergency nursing"
DOI: 10.1016/j.ienj.2020.100952
Abstract: BACKGROUND As many as 25% of all Dutch ambulance emergency service assignments result in non-conveyance of the patient to the hospital. Little is known about how patients and their relatives experience being left at home… read more here.
Keywords: non conveyance; conveyance; emergency; ambulance ... See more keywords
Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study☆
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DOI: 10.1016/j.jcrc.2016.12.003
Abstract: Purpose: Diaries summarizing intensive care are routine practice in some countries, although evidence to support diary use is limited. The purpose of this study was to identify whether distress post‐intensive care influences patients' and relatives'… read more here.
Keywords: mixed methods; exploratory mixed; methods study; intensive care ... See more keywords
The Impact of Leber Hereditary Optic Neuropathy on the Quality of Life of Patients and Their Relatives: A Qualitative Study
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DOI: 10.1097/wno.0000000000001564
Abstract: Supplemental Digital Content is Available in the Text. Background: Leber hereditary optic neuropathy (LHON) is an inherited mitochondrial disease characterized by severe bilateral vision loss and chronic visual impairment. The objective of this study was… read more here.
Keywords: optic neuropathy; hereditary optic; impact; leber hereditary ... See more keywords
Quality of life in patients with glioblastoma and their relatives.
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DOI: 10.1111/ane.13625
Abstract: OBJECTIVES Glioblastoma is the most aggressive primary brain tumour in adults. The rapid decline of physical and cognitive functions is likely to affect patients and relatives during the entire course of disease. The aim of… read more here.
Keywords: quality life; glioblastoma relatives; patients relatives; patients glioblastoma ... See more keywords
Patients' and relatives' views on unmet mental health care needs through a qualitative study: Symptoms are a major barrier.
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DOI: 10.1111/inm.13036
Abstract: Unmet needs in mental health care are a prominent issue and concern almost half of people with such disorders. Psymobile is a mobile outreach psychiatric team whose objective is to facilitate access to psychiatric services.… read more here.
Keywords: qualitative study; care; mental health; health care ... See more keywords
Humanizing and dehumanizing intensive care: Thematic synthesis (HumanIC)
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DOI: 10.1111/jan.15477
Abstract: Abstract Background Critical illness and the intensive care unit can be a terrifying experience to patients and relatives and they may experience the extreme life‐saving measures as dehumanizing. Humanizing intensive care is often described as… read more here.
Keywords: humanizing dehumanizing; intensive care; thematic synthesis; care ... See more keywords
Struggling for access to appropriate healthcare services: A qualitative content analysis of patient complaints.
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DOI: 10.1111/jan.15688
Abstract: AIM This study aimed to describe circumstances concerning access for patients and relatives to take part in patient health and safety in a hospital setting. DESIGN This study used a qualitative descriptive design and was… read more here.
Keywords: patient health; patient; access; patients relatives ... See more keywords
Improving self‐management for persons with Parkinson's disease through education focusing on management of daily life: Patients’ and relatives’ experience of the Swedish National Parkinson School
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DOI: 10.1111/jocn.14522
Abstract: AIMS AND OBJECTIVE To identify and describe experiences valuable for managing daily life after participation in the NPS self-management intervention. The second part was to explore the applicability of the Self- and family management framework by… read more here.
Keywords: persons parkinson; management; patients relatives; life ... See more keywords
Perceptions of peritonitis risk, prevention, diagnosis and stigma: Findings from a mixed methods study with patients and relatives using peritoneal dialysis.
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DOI: 10.1111/jorc.12464
Abstract: BACKGROUND Peritonitis is the main treatment-related complication of peritoneal dialysis and a primary concern for patients and their relatives. Therefore, understanding their perceptions of peritonitis is important. OBJECTIVES To explore patients' and relatives' perceptions of… read more here.
Keywords: peritonitis; diagnosis; peritoneal dialysis; risk ... See more keywords