Adverse events and disease flares after SARS-CoV-2 vaccination in patients with systemic lupus erythematosus
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DOI: 10.1007/s10067-021-05963-6
Abstract: Dear Editor, Vaccination against SARS-CoV-2 is particularly important for patients with systemic lupus erythematosus (SLE), who may be at increased risk of hospitalization from COVID-19 [1]. However, the most common reason for vaccine refusal is… read more here.
Keywords: sle; patients reported; sars cov; rheumatology ... See more keywords
A Multidimensional Profile of Dyspnea in Hospitalized Patients.
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DOI: 10.1016/j.chest.2019.04.128
Abstract: BACKGROUND Dyspnea is prevalent among hospitalized patients but little is known about the experience of dyspnea among inpatients. We sought to characterize the multiple sensations and associated emotions of dyspnea in patients admitted with dyspnea… read more here.
Keywords: dyspnea; multidimensional profile; patients reported; dyspnea hospitalized ... See more keywords
AB0513 COVID-19 PREVENTION IN PATIENTS WITH MODERATE-TO-SEVERE LUPUS DURING THE PANDEMIC: RESULTS FROM THE BILAG-BIOLOGICS REGISTER (BILAG-BR)
Sign Up to like & getrecommendations! Published in 2022 at "Annals of the Rheumatic Diseases"
DOI: 10.1136/annrheumdis-2022-eular.2885
Abstract: There have been concerns over the susceptibility of SLE patients to severe COVID-19 illness since the beginning of the pandemic, and many patients were assigned ‘clinically extremely vulnerable’ according to the UK’s shielding guidance issued… read more here.
Keywords: vaccination; bilag biologics; moderate severe; patients reported ... See more keywords
What do our patients think they know about atrial fibrillation? … Is that asking the right question?
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DOI: 10.1136/heartjnl-2017-312124
Abstract: In their Heart publication, Kaufman et al 1 analysed survey data examining patients’ self-reported understanding of various elements of care regarding their atrial fibrillation (AF). The authors used a cohort of patients recently diagnosed with AF from… read more here.
Keywords: atrial fibrillation; fibrillation; reported high; patients reported ... See more keywords
Pediatric Headache Experience During the COVID-19 Pandemic
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DOI: 10.1177/08830738221114240
Abstract: Objective Headache disorders are exceedingly common in children and adolescents. The association between headaches, emotional stress, and disruptions in daily routines are well established. The goal of this study is to compare the experiences of… read more here.
Keywords: headache; onset; covid pandemic; patients reported ... See more keywords
Work Productivity Loss and Quality of Life in Paroxysmal Nocturnal Hemoglobinuria Among Patients Receiving C5 Inhibitors in the United States
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DOI: 10.1182/blood-2020-142327
Abstract: INTRODUCTION Paroxysmal nocturnal hemoglobinuria (PNH) is a rare, acquired, hematologic disease characterized by chronic complement-mediated hemolysis. Treatment with the C5 inhibitor eculizumab has resulted in a reduction in intravascular hemolysis and improvements in morbidity and… read more here.
Keywords: eculizumab ravulizumab; productivity; patients reported; work productivity ... See more keywords
Long-term results of dorsal neuroma/nerve transposition in the surgical management of Morton’s neuroma and correlation with intraoperative anatomical variations
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DOI: 10.1186/s13018-022-02910-2
Abstract: Background Morton's neuroma (MN) is a common cause of forefoot pain. After failure of conservative management, surgical procedures include neurectomy or neuroma preserving procedures; resection of deep transverse intermetatarsal ligament only (DTIML), dorsal neurolysis, dorsal… read more here.
Keywords: nerve transposition; morton neuroma; long term; nerve ... See more keywords
Differences among Asian/Asian American, and Caucasian breast and gynecologic cancer patient-reported survivorship needs, symptoms, and illness mindsets (N=220).
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DOI: 10.1200/jco.2019.37.15_suppl.11620
Abstract: 11620 Background: Cancer experiences are mediated by host and disease factors and affected by social and cultural determinants of health. We sought to characterize perceived supportive care needs and domains of psychosocial functioning among a… read more here.
Keywords: breast gynecologic; cancer; asian american; asian asian ... See more keywords
Quality of life after resection of a meningioma—A cross-cultural comparison of Indian and Australian patients
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DOI: 10.1371/journal.pone.0275184
Abstract: Purpose To compare health-related quality of life (HRQoL) and symptom burden following meningioma resection in patients from two samples from Australia and India. This will add to the body of data on the longer-term consequences… read more here.
Keywords: australian patients; patients reported; cross cultural; quality life ... See more keywords
Current status of the management of hereditary angioedema in China: a patient-based, cross-sectional survey
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DOI: 10.1684/ejd.2020.3758
Abstract: Background Hereditary angioedema (HAE) is a rare, inherited disorder characterized by unpredictable and recurrent cutaneous and mucosal oedema. Objectives This study aimed to identify the current status of HAE management in China. Materials and Methods… read more here.
Keywords: current status; survey; patients reported; management ... See more keywords
Management of Asthma Exacerbations in Southeast Asian Tertiary Care
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DOI: 10.2147/jaa.s309143
Abstract: Background There have been limited reports looking into the care of patients with asthma exacerbations admitted to tertiary hospitals in Southeast Asia. This study aims to determine the extent in which the 2019 Global Initiative… read more here.
Keywords: care; management asthma; asthma; patients reported ... See more keywords