Understanding the Needs and Financial Challenges of Patients With Epidermolysis Bullosa: Insights From Donation Requests.
Sign Up to like & getrecommendations! Published in 2025 at "Pediatric dermatology"
DOI: 10.1111/pde.70047
Abstract: Epidermolysis bullosa (EB) is a rare genetic disorder requiring intensive and costly care, often diagnosed in infancy when families are unprepared for the financial burden. We analyzed 160 U.S.-based crowdfunding campaigns for living EB patients, extracting… read more here.
Keywords: epidermolysis bullosa; patients requested; understanding needs; financial challenges ... See more keywords