Hospitals should act now to notify patients about research use of their data and biospecimens
Sign Up to like & getrecommendations! Published in 2020 at "Nature Medicine"
DOI: 10.1038/s41591-020-0795-6
Abstract: Private industry is increasingly soliciting hospitals to sell or share health data and biospecimens, but current laws offer more disclosure and consent protections for research participants than for patients receiving clinical care. Hospitals can offer… read more here.
Keywords: research use; research; patients research; data biospecimens ... See more keywords
How are PCORI-funded researchers engaging patients in research and what are the ethical implications?
Sign Up to like & getrecommendations! Published in 2017 at "AJOB Empirical Bioethics"
DOI: 10.1080/23294515.2016.1206045
Abstract: ABSTRACT Background: Despite growing interest in patient engagement in research, there are few empirical investigations of the nature of engagement and its effects. This information is important, not only to inform practical decisions researchers and… read more here.
Keywords: research; patients research; engaging patients; patients engaged ... See more keywords