Development and implementation of the AIDA international registry for patients with Schnitzler's syndrome
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DOI: 10.3389/fmed.2022.931189
Abstract: Objective The present paper describes the design, development, and implementation of the AutoInflammatory Disease Alliance (AIDA) International Registry specifically dedicated to patients with Schnitzler's syndrome. Methods This is a clinical physician-driven, population- and electronic-based registry… read more here.
Keywords: development implementation; aida international; registry; international registry ... See more keywords