Trabecular bone score in people with cystic fibrosis
Sign Up to like & getrecommendations! Published in 2022 at "Osteoporosis International"
DOI: 10.1007/s00198-021-06290-x
Abstract: People with cystic fibrosis (CF) are at increased risk of fractures. Our study found that low trabecular bone score (TBS) (a measure of bone strength) may help identify people with CF at risk of fractures… read more here.
Keywords: cystic fibrosis; bone; people cystic; trabecular bone ... See more keywords
SARS-CoV-2 antibodies among people with cystic fibrosis prior to the vaccination campaign: A seroprevalence study in two specialized centres in Northern Italy
Sign Up to like & getrecommendations! Published in 2021 at "Journal of Cystic Fibrosis"
DOI: 10.1016/j.jcf.2021.12.011
Abstract: The prevalence of anti-SARS-CoV-2 antibodies in people with cystic fibrosis (CF) is largely unknown. We carried out a cross-sectional study between March and June 2021 with the aim of estimating the seroprevalence of anti-SARS-CoV-2 antibodies… read more here.
Keywords: cystic fibrosis; people cystic; sars cov; cov antibodies ... See more keywords
A model-based economic analysis of the CFHealthHub intervention to support adherence to inhaled medications for people with cystic fibrosis in the UK
Sign Up to like & getrecommendations! Published in 2023 at "International Journal of Technology Assessment in Health Care"
DOI: 10.1017/s0266462322003373
Abstract: Abstract Background Adherence to preventative inhaled therapies in people with cystic fibrosis (CF) is low, resulting in potentially avoidable health losses and the need for costly rescue therapies. Objectives To estimate the cost-effectiveness of the… read more here.
Keywords: people cystic; health; adherence; cfhh intervention ... See more keywords
Online activity - A beaming good initiative! Delivering alternative exercise opportunities for people with cystic fibrosis.
Sign Up to like & getrecommendations! Published in 2023 at "Physiotherapy theory and practice"
DOI: 10.1080/09593985.2023.2182654
Abstract: BACKGROUND Increasing physical activity in people with Cystic Fibrosis (pwCF) can positively influence their physical and mental wellbeing. Online activities provide opportunity for outpatient CF populations to enhance physical activity. METHODS PwCF within a large… read more here.
Keywords: online activity; people cystic; activity; exercise ... See more keywords
Pharmacogenetic actionability and medication prescribing in people with cystic fibrosis
Sign Up to like & getrecommendations! Published in 2023 at "Clinical and Translational Science"
DOI: 10.1111/cts.13479
Abstract: Although major advancements have been made in the therapeutics for people with cystic fibrosis (PwCF), many still require the use of multiple medications to manage acute exacerbations of disease and maintain health. Iterative trial and… read more here.
Keywords: medication; people cystic; least one; pharmacogenetic actionability ... See more keywords
Protocol for establishing a core outcome set for evaluation in studies of pulmonary exacerbations in people with cystic fibrosis
Sign Up to like & getrecommendations! Published in 2022 at "BMJ Open"
DOI: 10.1136/bmjopen-2021-056528
Abstract: Introduction Pulmonary exacerbations are associated with increased morbidity and mortality in people with cystic fibrosis (CF). There is no consensus about which outcomes should be evaluated in studies of pulmonary exacerbations or how these outcomes… read more here.
Keywords: people cystic; core; core outcome; studies pulmonary ... See more keywords
Improvements in glucose regulation in children and young people with cystic fibrosis related diabetes following initiation of Elexacaftor/Tezacaftor/Ivacaftor.
Sign Up to like & getrecommendations! Published in 2023 at "Hormone research in paediatrics"
DOI: 10.1159/000530571
Abstract: INTRODUCTION Cystic fibrosis transmembrane receptor (CFTR) modulators are increasingly used in children and young people with Cystic Fibrosis (CF). Data in adults show there may be an impact on glycaemic control in those with CF… read more here.
Keywords: young people; people cystic; glycaemic control; fibrosis ... See more keywords
Tissue-localized immune responses in people with cystic fibrosis and respiratory nontuberculous mycobacteria infection.
Sign Up to like & getrecommendations! Published in 2022 at "JCI insight"
DOI: 10.1172/jci.insight.157865
Abstract: Nontuberculous mycobacteria (NTM) are an increasingly common cause of respiratory infection in people with cystic fibrosis (PwCF). Relative to those with no history of NTM infection (CF-NTMNEG), PwCF and a history of NTM infection (CF-NTMPOS)… read more here.
Keywords: nontuberculous mycobacteria; people cystic; immune responses; infection ... See more keywords
Using poetry to explore normalcy as a coping mechanism for young people with cystic fibrosis
Sign Up to like & getrecommendations! Published in 2017 at "Journal of Research in Nursing"
DOI: 10.1177/1744987117732615
Abstract: Living with chronic illness can lead to a spiral of losses including social capital, mobility, physical health and self-worth. One method of coping with a long-term condition is normalcy: psychological bracketing of the illness as… read more here.
Keywords: cystic fibrosis; poetry; people cystic; using poetry ... See more keywords
The RISE study protocol: Resilience lmpacted by positive Stressful Events for people with cystic fibrosis
Sign Up to like & getrecommendations! Published in 2023 at "ERJ Open Research"
DOI: 10.1183/23120541.00535-2022
Abstract: For people with cystic fibrosis (pwCF), gaining access to elexacaftor/tezacaftor/ivacaftor (ETI) therapy, a new modulator drug combination, is perceived as a positive life event. ETI leads to a strong improvement of disease symptoms. However, some… read more here.
Keywords: eti therapy; people cystic; rise study; therapy ... See more keywords
Impact of COVID-19 on Lung Disease in People with Cystic Fibrosis: A 6-Month Follow-Up Study on Respiratory Outcomes
Sign Up to like & getrecommendations! Published in 2022 at "Biomedicines"
DOI: 10.3390/biomedicines10112771
Abstract: Background: The impact of COVID-19 on respiratory outcomes in people with cystic fibrosis (pwCF) has not been clearly characterized. We evaluated changes in respiratory function indicators derived from spirometry and pulmonary exacerbation rates 6 months… read more here.
Keywords: people cystic; impact covid; respiratory; study ... See more keywords