0810 Modelling Key Drivers of Increased Costs and Mortality in Narcolepsy
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DOI: 10.1093/sleep/zsaf090.0810
Abstract: While increased costs and mortality in people with narcolepsy are well-established, the underlying drivers of these outcomes remain underexplored. This study aimed to identify and quantify the probable causes of elevated direct costs, indirect costs,… read more here.
Keywords: year; people narcolepsy; mortality; mortality people ... See more keywords
0840 Oxybate Awareness, Usage, and Experience Among People with Narcolepsy: A MyNarcolepsyTeam Survey Analysis
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DOI: 10.1093/sleep/zsaf090.0840
Abstract: Narcolepsy is characterized by excessive daytime sleepiness (EDS) and can occur with or without cataplexy. Oxybates are FDA-approved to treat EDS or cataplexy in people with narcolepsy. Immediate-release twice-nightly sodium oxybate (TN-SXB) and calcium, magnesium,… read more here.
Keywords: awareness usage; people narcolepsy; treatment; survey ... See more keywords
The development of a health-related quality-of-life instrument for young people with narcolepsy: NARQoL-21
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DOI: 10.1186/s12955-017-0707-8
Abstract: BackgroundNarcolepsy is a lifelong sleep disorder with a prevalence of between 0.03% and 0.06% and onset at around puberty. It is associated with psychiatric comorbidities and cognitive difficulties. No valid and reliable condition-specific health-related quality-of-life… read more here.
Keywords: validity; people narcolepsy; health; quality life ... See more keywords