Characterization of health concerns in people with neurofibromatosis type 1
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DOI: 10.1002/mgg3.2077
Abstract: Neurofibromatosis 1 (NF1) is a common cancer predisposition syndrome. Affected individuals require lifelong surveillance and often suffer progressive disfigurement due to cutaneous neurofibromas. The aim of this research was to characterize health concerns and quality… read more here.
Keywords: health concerns; health; neurofibromatosis type; characterization health ... See more keywords