Needs of people with rare diseases that can be supported by electronic resources: a scoping review
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DOI: 10.1136/bmjopen-2021-060394
Abstract: Objectives Rare diseases are characterised by low incidence, often with little evidence for effective treatments. Isolated patients and specialist centres for rare diseases are increasingly connected, thanks to the internet. This scoping review aimed to… read more here.
Keywords: rare disease; scoping review; people rare; electronic resources ... See more keywords