The effect of emicizumab prophylaxis on health‐related outcomes in persons with haemophilia A with inhibitors: HAVEN 1 Study
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DOI: 10.1111/hae.13618
Abstract: Persons with haemophilia A (PwHA) with inhibitors to factor VIII often experience decreased health‐related outcomes. In HAVEN 1 (NCT02622321), there was a statistically significant reduction in bleeding with emicizumab prophylaxis versus no prophylaxis. read more here.
Keywords: related outcomes; health related; emicizumab prophylaxis; persons haemophilia ... See more keywords
Screening urinalysis demonstrates that haematuria is a frequent finding in persons with haemophilia treated at a paediatric haemophilia treatment centre
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DOI: 10.1111/hae.13815
Abstract: Haematuria is a recognized complication of haemophilia A and B (HA, HB). Adult persons with haemophilia (PWH) have a higher prevalence of renal disease than the general population. There is limited literature investigating the prevalence… read more here.
Keywords: haemophilia; demonstrates haematuria; haematuria frequent; persons haemophilia ... See more keywords
In‐hospital management of persons with haemophilia and COVID‐19: practical guidance
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DOI: 10.1111/hae.14045
Abstract: A new disease (COVID‐19) caused by a coronavirus (SARS‐CoV‐2) that appeared in China at the end of 2019 is currently spreading globally. This emerging virus is mainly responsible for respiratory tract infections and potentially fatal… read more here.
Keywords: practical guidance; persons haemophilia; hospital management; haemophilia covid ... See more keywords
All‐cause mortality and causes of death in persons with haemophilia: A systematic review and meta‐analysis
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DOI: 10.1111/hae.14423
Abstract: Improvements in haemophilia treatment over the last decades resulted in increased life expectancy in persons with haemophilia (PWH). read more here.
Keywords: haemophilia systematic; death persons; cause mortality; persons haemophilia ... See more keywords
Managing prostatic illness in persons with haemophilia
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DOI: 10.1111/hae.14519
Abstract: Considering the progressive ageing of the haemophilia population, it is surprising that diseases of the prostate and their medical and surgical management received so far relatively little attention in the literature and guidelines.1 Prostate cancer… read more here.
Keywords: persons haemophilia; illness; prostate; procedure ... See more keywords
Blood pressure in persons with haemophilia with a focus on haemophilia‐specific risk factors
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DOI: 10.1111/hae.14614
Abstract: Persons with haemophilia (PWH) have a higher prevalence of hypertension compared to the general population, which cannot be explained entirely by the usual cardiovascular risk factors. Neutralizing antibodies (inhibitors) against clotting factors might have some… read more here.
Keywords: risk factors; persons haemophilia; blood pressure; pressure persons ... See more keywords
Health‐related quality of life in persons with haemophilia in Afghanistan
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DOI: 10.1111/hae.14772
Abstract: Haemophilia is the most common severe congenital bleeding disorder and can significantly influence patients’ quality of life. The health‐related quality of life (HRQoL) is a multi‐dimensional concept that assess effect of different aspects of health… read more here.
Keywords: health; persons haemophilia; quality life; related quality ... See more keywords
Functional decline in persons with haemophilia and factors associated with deterioration
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DOI: 10.1111/hae.14783
Abstract: The World Haemophilia Federation advises regular musculoskeletal assessment covering all International Classification of Functioning and Health (ICF) domains, including limitations in activities and participation in persons with haemophilia (PWH). This enables clinicians to detect changes… read more here.
Keywords: persons haemophilia; haemophilia factors; factors associated; decline persons ... See more keywords