Incontinentia pigmenti burden scale: designing a family burden questionnaire
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DOI: 10.1186/s13023-019-1234-y
Abstract: BackgroundIncontentia pigmenti (IP) is a rare multisystem disorder of ectodermal origin comprising skin, dental, ocular and central nervous system features. Symptomatic treatments are adapted to each family according to the patient’s disability. Due to its… read more here.
Keywords: pigmenti burden; family burden; incontinentia pigmenti; family ... See more keywords