Information is power: The experiences, attitudes and needs of individuals who chose to have prenatal genomic sequencing for fetal anomalies
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DOI: 10.1002/pd.6153
Abstract: This study sought to evaluate the experiences of individuals who chose to participate in a study and receive prenatal genomic sequencing (pGS) for fetuses with congenital structural anomalies. read more here.
Keywords: individuals chose; information power; genomic sequencing; prenatal genomic ... See more keywords
Factors that impact on women's decision‐making around prenatal genomic tests: An international discrete choice survey
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DOI: 10.1002/pd.6159
Abstract: We conducted a survey‐based discrete‐choice experiment (DCE) to understand the test features that drive women's preferences for prenatal genomic testing, and explore variation across countries. read more here.
Keywords: survey; impact women; prenatal genomic; factors impact ... See more keywords
Parental Hopes and Understandings of the Value of Prenatal Diagnostic Genomic Sequencing: A Qualitative Analysis
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DOI: 10.3389/fgene.2022.883225
Abstract: Objective: To provide qualitative empirical data on parental expectations of diagnostic prenatal genomic sequencing and the value of the results to families. Methods: We interviewed 15 families—mothers and/or fathers—who had had prenatal genomic sequencing about… read more here.
Keywords: understandings value; genomic sequencing; hopes understandings; value ... See more keywords