How many zebras are there, and where are they hiding in medical literature? A literature review of publications on rare diseases
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DOI: 10.1080/21678707.2019.1684260
Abstract: ABSTRACT Background: Reliable and accurate medical literature is essential for patients with rare diseases (affecting ~400 million people globally), their advocates, and caregivers (PACs), and health-care professionals (HCPs). Methods: We quantified the number of English-language… read more here.
Keywords: literature; rare diseases; disease; medical literature ... See more keywords