Functional impairments, fatigue and quality of life in RYR1-related myopathies: A questionnaire study
Sign Up to like & getrecommendations! Published in 2019 at "Neuromuscular Disorders"
DOI: 10.1016/j.nmd.2018.10.006
Abstract: Mutations in RYR1 are a common genetic cause of non-dystrophic neuromuscular disorders. To obtain baseline data concerning the prevalence of fatigue, the psychological disease burden and quality of life associated with these common conditions, we… read more here.
Keywords: ryr1 related; questionnaire study; related myopathies; quality life ... See more keywords
User acceptance of automated shuttles in Berlin-Schöneberg: A questionnaire study
Sign Up to like & getrecommendations! Published in 2018 at "Transportation Research Part F: Traffic Psychology and Behaviour"
DOI: 10.1016/j.trf.2018.06.024
Abstract: Abstract Automated shuttles are now in a prototyping phase in several research projects. However, there is still a paucity of knowledge on the acceptance of these shuttles. This paper presents the results of a questionnaire… read more here.
Keywords: acceptance automated; automated shuttles; user acceptance; questionnaire study ... See more keywords
Improving patient information - are the new media already requested? - A questionnaire study at a gastroenterology outpatient clinic.
Sign Up to like & getrecommendations! Published in 2017 at "Zeitschrift fur Gastroenterologie"
DOI: 10.1055/s-0043-106860
Abstract: Background Information provided for patients is an essential factor for communication between patients and health-care professionals. To analyze the most used sources of medical information and requested media for patient information, a questionnaire study was initiated.… read more here.
Keywords: questionnaire study; information; patient information; gastroenterology ... See more keywords
Spectrum of Clinical Features in XL-MTM Carriers: An International Questionnaire Study.
Sign Up to like & getrecommendations! Published in 2021 at "Neurology"
DOI: 10.1212/wnl.0000000000012236
Abstract: OBJECTIVE To characterize the spectrum of clinical features in a cohort of X-linked myotubular myopathy (XL-MTM) carriers, including prevalence, genetic features, clinical symptoms and signs, as well as associated disease burden. METHODS We performed a… read more here.
Keywords: questionnaire study; clinical features; manifesting carriers; spectrum clinical ... See more keywords
What Do We Know about Early Management of Sepsis and Septic Shock in Polish Hospitals? A Questionnaire Study
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DOI: 10.3390/healthcare9020140
Abstract: Background: Sepsis and septic shock are medical emergencies with a high risk of poor prognosis. We investigate the correspondence between Surviving Sepsis Campaign (SSC) guidelines and clinical practice in Poland, with special attention given to… read more here.
Keywords: septic shock; sepsis septic; icus; questionnaire study ... See more keywords