[European Reference Network for Rare Hepatological Diseases (ERN RARE-LIVER)].
Sign Up to like & getrecommendations! Published in 2021 at "Der Internist"
DOI: 10.1007/s00108-021-00986-2
Abstract: Patients with rare diseases often receive insufficient medical care. The European Reference Networks (ERNs) were initiated by the European Union to improve healthcare for patients with rare and complex diseases within Europe. The Reference Network… read more here.
Keywords: reference network; ern rare; rare liver; european reference ... See more keywords
Rare liver disease patients' and healthcare providers' view on mobile app requirements and functionality: a single center survey for the European Reference Network on Hepatological diseases (ERN RARE-LIVER).
Sign Up to like & getrecommendations! Published in 2021 at "Clinics and research in hepatology and gastroenterology"
DOI: 10.1016/j.clinre.2021.101760
Abstract: BACKGROUND More patient data are needed to improve research on rare liver diseases. Mobile health apps enable an exhaustive data collection. Therefore, the European Reference Network on Hepatological diseases (ERN RARE-LIVER) intends to implement an… read more here.
Keywords: healthcare providers; liver diseases; app; patients healthcare ... See more keywords
Rare liver diseases are not rare in China
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DOI: 10.1111/liv.15267
Abstract: Rare diseases, also known as orphan diseases, are a group of diseases that affect a relatively small number of people. Low incidence rates, atypical symptoms, imperfect diagnosis criteria and few treatment options impose medical, psychological… read more here.
Keywords: rare china; china rare; liver; rare liver ... See more keywords
Malignant hepatic epithelioid hemangioendothelioma: case of a rare liver tumor mimicking metastasis
Sign Up to like & getrecommendations! Published in 2022 at "Reports of Practical Oncology and Radiotherapy"
DOI: 10.5603/rpor.a2022.0094
Abstract: This article is available in open access under Creative Common Attribution-Non-Commercial-No Derivatives 4.0 International (CC BY-NC-ND 4.0) license, allowing to download articles and share them with others as long as they credit the authors and… read more here.
Keywords: hemangioendothelioma case; hepatic epithelioid; epithelioid hemangioendothelioma; case rare ... See more keywords