Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders
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DOI: 10.1080/17482631.2020.1725362
Abstract: ABSTRACT Purpose: The experiences of parents caring for the complex care needs of children with rare neurodevelopmental disorders are not well understood. Parents struggle to meet their children’s medical, behavioural, and social needs within and… read more here.
Keywords: rare neurodevelopmental; children rare; parents experience; caring children ... See more keywords