Group intervention programs and their impact on well-being and quality-of-life for adults living with a rare or orphan disease - realist review of literature.
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DOI: 10.1080/09638288.2022.2104943
Abstract: PURPOSE Adults living with a rare or orphan diseases (ROD) experience common psychosocial difficulties that are often poorly addressed in usual care. This realist literature review aims to inform the development, evaluation and implementation of… read more here.
Keywords: living rare; review; rare orphan; group ... See more keywords