Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility
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DOI: 10.3389/fgene.2021.535340
Abstract: Children with rare and common diseases now undergo whole genome sequencing (WGS) in clinical and research contexts. Parents sometimes request access to their child's raw genomic data, to pursue their own analyses or for onward… read more here.
Keywords: research; raw genomic; genomic data; legal rights ... See more keywords