[European Reference Network for Rare Hepatological Diseases (ERN RARE-LIVER)].
Sign Up to like & getrecommendations! Published in 2021 at "Der Internist"
DOI: 10.1007/s00108-021-00986-2
Abstract: Patients with rare diseases often receive insufficient medical care. The European Reference Networks (ERNs) were initiated by the European Union to improve healthcare for patients with rare and complex diseases within Europe. The Reference Network… read more here.
Keywords: reference network; ern rare; rare liver; european reference ... See more keywords
The VASCERN European Reference Network: An overview.
Sign Up to like & getrecommendations! Published in 2022 at "European journal of medical genetics"
DOI: 10.1016/j.ejmg.2022.104420
Abstract: Established since 2017 and co-funded by the European commission, VASCERN is the European Reference Network aiming at improving and homogenizing care of patients with rare multisystemic vascular diseases throughout Europe. It gathers 31 expert teams… read more here.
Keywords: european reference; vascern european; reference network; network ... See more keywords
Reference Network Construction for Persistent Scatterer Detection in SAR Tomography: Ant Colony Search Algorithm (ACSA)
Sign Up to like & getrecommendations! Published in 2022 at "IEEE Journal of Selected Topics in Applied Earth Observations and Remote Sensing"
DOI: 10.1109/jstars.2022.3176498
Abstract: Synthetic aperture radar (SAR) tomography is a powerful multibaseline technique allowing to reconstruct volume structures by using datasets of the same area with slightly different viewing angles. Nowadays, the reference network technique (RNT) is widely… read more here.
Keywords: construction; reference network; sar tomography; sar ... See more keywords
Practical management of epidermolysis bullosa: consensus clinical position statement from the European Reference Network for Rare Skin Diseases
Sign Up to like & getrecommendations! Published in 2021 at "Journal of the European Academy of Dermatology and Venereology"
DOI: 10.1111/jdv.17629
Abstract: Inherited epidermolysis bullosa (EB) comprises rare disorders that manifest with fragility and blistering of the skin and mucous membranes, with variable clinical severity. Management of EB is challenging due to disease rarity and complexity, the… read more here.
Keywords: reference network; skin; management; reference ... See more keywords